Hi. I'm Clair, and I was just diagnosed with hypogammaglobulinemia. I have been sick for almost two years, dragged around for years before that. I get everything, and then I get secondary infections.
My doc tested me for NHL and I do not have it. Also negative on leukemia, so yay on that. I have asthma, and for the past 6 months I have been fighting to breathe, have been on steroids several times--my inhaler, which used to just zap any problem I had--doesn't seem to do anything.
If I go up stairs I sweat and feel weak and dizzy--oh, I think anyone with this knows the drill. I try to start things and can't finish them. I was starting to believe that I was just getting lazy. Or that maybe certain docs were right and I was just a malingerer.
I have not started treatment yet. I know it's problematic for some people, but I would like to get started yesterday. After looking at the treatment options, I think I am more inclined to go with the once a week shots--we'll see, I guess.
I was surprised to find this community here at PLM. I also have a mood disorder, but it well controlled with medication. I didn't think I'd find anyone here with this mouthful of a disease/syndrome whatever! There sure aren't very many of us. Please feel free to message me at any time. I have to admit I'm a little scared, maybe more than a little. At the same time, I think--maybe I'll feel better. Maybe I won't be sick constantly. If one more person says to me "You're sick a LOT"--oh, my gut reaction is to cough on them. I don't, but I want to. Lol.