1. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby lost a star star earnedstar earnedstar not earned

  2. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby completed the PDRS survey

    • PDRS: 11
    • On treatment
    • none Mouth/throat
    • none Arms
    • mild Chest
    • mild Legs
  3. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her weight

  4. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her symptoms

    Excessive daytime sleepiness (somnolence) BetterExcessive daytime sleepiness (somnolence)
    Anxious mood WorseAnxious mood, Constipation, Pain, Sexual dysfunction
  5. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby shared details about Carbidopa-Levodopa 25-100

    14 x 25 mg-100 mg daily (was 4.5 x 25 mg-100 mg daily until ) Dosage14 x 25 mg-100 mg daily (was 4.5 x 25 mg-100 mg daily until )
  6. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby earned a star! star earnedstar earnedstar earned

  7. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby lost a star star earnedstar earnedstar not earned

  8. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby completed the PDRS survey

    • PDRS: 10
    • On treatment
    • none Mouth/throat
    • none Arms
    • mild Chest
    • mild Legs

    stressful situations tend to stimulate the tremors.

  9. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her weight

  10. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby added a treatment evaluation for Carbidopa-Levodopa 25-100

    • Perceived effectiveness for Parkinson's Disease: Moderate
    • Side Effects: Mild
    • Adherence: Usually
    • Burden: A little
    • Dosage: 4.5 x 25 mg-100 mg Daily
    • Advice & Tips: I've tried it with food and without food; nothing much helps. It usually happens with the morning dose; often I end up going back to bed for a few hours, losing the morning entirely.
    • Cost: < $25 monthly
    I've tried it with food and without food; nothing much helps. It usually happens with the morning dose; often I end up going back to bed for a few hours, losing the morning entirely.
  11. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her symptoms

    Stiffness/Spasticity WorseStiffness/Spasticity, Excessive daytime sleepiness (somnolence)
    mild MildLeft leg drag
  12. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby earned a star! star earnedstar earnedstar earned

  13. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby lost a star star earnedstar earnedstar not earned

  14. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby was feeling good

  15. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby updated her weight

  16. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby added a treatment evaluation for Aspirin from

    • Perceived effectiveness for General health: Can’t tell
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 81 mg Daily
    • Cost: < $25 monthly
  17. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    Stopped Aspirin

    • Stopped:
    • Reasons: Personal research
  18. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby added a treatment evaluation for CoQ10 (CoEnzyme Q10) from

    • Perceived effectiveness for Parkinson's Disease: Can’t tell
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: 1200 mg Daily
    • Cost: $200+ monthly
  19. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    Stopped CoQ10 (CoEnzyme Q10)

    • Stopped:
    • Reasons: Doctor's advice
  20. Portrait default thumb
    toby
    Sex: F
    Data Quality: 2 stars
    On
    Mouth/throat: none
    Arms: none
    Chest: mild
    Legs: mild
    I am: g
    I have:
    Parkinson's

    toby completed the QOL survey

  21. Show more