cpt_c_pike's Journal

cpt_c_pike: Sex: M; Data Quality: 1 star; ALS: 6 yrs; Bulbar: none; Arms: moderate; Chest: none; Legs: mild

cpt_c_pike: Male, 39 years; montreal, QC

Primary Condition: ALS and 1 more ▼

First symptom: Nov 2006
Diagnosis: Mar 2011

cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS

171 lb BMI: 23.8
cpt_c_pike updated his weight for Mar 27, 2013 Mar 27, 2013
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS

1 star
cpt_c_pike lost a star Feb 21, 2013
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
QOL
- Bad Social
- Good Mental
- Bad Physical
cpt_c_pike completed the QOL survey for Feb 11, 2013 Feb 11, 2013
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS

171 lb BMI: 23.8
cpt_c_pike updated his weight for Feb 4, 2013 Feb 11, 2013
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
FRS: 31
- none Head
- moderate Arms
- none Torso
- mild Legs
cpt_c_pike completed the FRS survey for Feb 11, 2013 Feb 11, 2013
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS

2 stars
cpt_c_pike earned a star! Feb 11, 2013
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS

172 lb BMI: 24.0
cpt_c_pike updated his weight for Jan 4, 2013 Jan 08, 2013
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS

1 star
cpt_c_pike lost a star Dec 26, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS

171 lb BMI: 23.8
cpt_c_pike updated his weight for Nov 30, 2012 Nov 30, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
Chlorophyll Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
- Perceived effectiveness for Increased energy: Moderate
- Perceived effectiveness for General health: Slight
- Perceived effectiveness for energy: Slight
- Side Effects: None
- Adherence: Sometimes
- Burden: Somewhat
cpt_c_pike added a treatment evaluation for Chlorophyll Nov 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
Chlorella Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
- Perceived effectiveness for Support nutritional health: ?Can't tell
- Side Effects: None
- Adherence: Always
- Burden: A little
cpt_c_pike added a treatment evaluation for Chlorella from Apr 23, 2012 Nov 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
QOL
- Bad Social
- Good Mental
- Bad Physical
cpt_c_pike completed the QOL survey for Nov 23, 2012 Nov 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
Protein Supplements Treatment Evaluation
- Perceived effectiveness for Fatigue: Slight
- Perceived effectiveness for Support weight gain: Slight
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
- Side Effects: None
- Adherence: Usually
- Burden: A little
cpt_c_pike added a treatment evaluation for Protein Supplements from Feb 23, 2012 Nov 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
Symptom Update
- mild Stiffness/Spasticity
- none Anxious mood
- moderate Atrophy of arm muscles
- moderate Atrophy of forearm muscles
- moderate Atrophy of hand muscles
- mild Balance problems
- none Constipation
- mild Cramps in calf muscles
- mild Cramps in neck
- mild Depressed mood
- none Dizziness
- mild Emotional lability
- mild Excessive yawning
- mild Excess saliva
- mild Falls
- mild Fasciculations
- moderate Fatigue
- moderate Fingers curl
- mild Foot drop
- none Increased energy
- none Inflammation
- none Insomnia
- severe Loss of manual dexterity
- mild Muscle spasms
- none Neck movement dizziness (Cervicogenic dizziness)
- mild Pain
- mild Restless legs at night
- none spending time on the computer
- mild Stiffness in neck
- moderate Walking problems
- See more
cpt_c_pike updated his symptoms for Nov 23, 2012 Nov 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
Chlorophyll
- - Started: May 1, 2012
  - Current Dosage: 10 mL daily
- Purpose: energy, General health, and 2 more
- View Latest Evaluation
cpt_c_pike updated the treatment Chlorophyll Nov 23, 2012
- Added
  - Started: May 01, 2012
  - Dosage: 10 mL daily
  - Purpose: energy, General health, Increased energy, and ALS (Amyotrophic Lateral Sclerosis)
  - May 01, 2012
- Evaluated
  - View Evaluation
  - Nov 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
Chlorella
- - Stopped: Apr 23, 2012
  - Reason: Did not seem to work and Other
  - Started: Jan 19, 2011
  - Last Dosage: 1000 mg daily
- Purpose: Support nutritional health and ALS
- View Latest Evaluation
cpt_c_pike updated the treatment Chlorella Nov 23, 2012
- Added
  - Started: Jan 19, 2011
  - Dosage: 1000 mg daily
  - Purpose: Support nutritional health and ALS (Amyotrophic Lateral Sclerosis)
  - Jan 19, 2011
- Stopped
  - Date: Apr 23, 2012
  - Reason: Did not seem to work and Other
  - Apr 23, 2012
- Evaluated
  - View Evaluation
  - Apr 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
Protein Supplements
- - Stopped: Feb 23, 2012
  - Reason: Did not seem to work and Other
  - Started: Jul 7, 2011
  - Last Dosage: 2 tbs. daily
- Purpose: ALS, Support weight gain, and Fatigue
- View Latest Evaluation
cpt_c_pike updated the treatment Protein Supplements Nov 23, 2012
- Added
  - Started: Jul 07, 2011
  - Dosage: 2 tbs. daily
  - Purpose: ALS (Amyotrophic Lateral Sclerosis), Support weight gain, and Fatigue
  - Jul 07, 2011
- Stopped
  - Date: Feb 23, 2012
  - Reason: Did not seem to work and Other
  - Feb 23, 2012
- Evaluated
  - View Evaluation
  - Feb 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
Riluzole
- - Started: Sep 10, 2012
  - Current Dosage: 100 mg daily
- Purpose: ALS
cpt_c_pike updated the treatment Riluzole Nov 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Nov 28, 2006
- Diagnosis: Mar 3, 2011
cpt_c_pike updated the condition ALS (Amyotrophic Lateral Sclerosis) Nov 23, 2012
cpt_c_pike

Sex: M

Data Quality: 1 star

Bulbar: none

Arms: moderate

Chest: none

Legs: mild

I am: vg

I have:
ALS

2 stars
cpt_c_pike earned a star! Nov 23, 2012
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