- cinéphile 94
- Sex: M
- Data Quality: 3 stars
- ALS: 4 yrs
- Bi-Pap Wheelchair
- Bulbar: mild
- Arms: severe
- Chest: moderate
- Legs: severe
- cinéphile 94
- Male, 59 years
- Primary Condition
- First symptom
- Jul 08, 2012
About cinéphile 94
First life (20-28): Rock singer,guitar player ,songwriter...
http://www.myspace.com/stephanegranger ...............Second life (41-49): stock fund manager......
Third life (55-?): living with ALS.........
Afterlife: ready to go peacefully..........
Married, 3 children(born 80,83,87)...
I've been practicing breating exercices since october 2010 (yoga pranayama)...
I started vitamines on April 2011, LDN, detoxifier & antioxydants from september/november 2011
It helped me a lot, I experienced some improvements!
one hour of magnétic healer. 4 days later, I felt less tired. Combine with giving up rilutek (on march,31,2011),I've more appetite and a better sleep.Every week for several months he worked on me from a distance! I've been full of energy ever since.I've added some vitamines and an anti-inflammatory (Tic-tox). I've been feeling much better ever since.
I've added LDN to boost my immune system, grape seed extract, Zinc (antioxydants ) and a liver detoxifier following this australian PALS'advices : http://home.goulburn.net.au/~shackel/introduction.htm . I'm feeling even better.Some strengh is coming back in some of my muscles!
My speech therapist has told me that the volume of my neck's muscles have increased!!!(I knew that my neck was stronger, but an increase in volume !!!) For me it means that ALS is reversible!!!
unfortunately I'm losing my voice. While some improvements in my arms and legs are going on from month to month, my breathing is getting worse: I need the Bi-Pap 22h/24 now...
- Profile Activity
- 2,889 Views