35670-full
cinéphile 94
Sex: M
Data Quality: 3 stars
ALS: 4 yrs
Bi-Pap Wheelchair
Bulbar: mild
Arms: severe
Chest: moderate
Legs: severe
cinéphile 94
Male, 59 years
France
Primary Condition
ALS
First symptom
Diagnosis
Deceased
Jul 08, 2012

About cinéphile 94

First life (20-28): Rock singer,guitar player ,songwriter... http://www.myspace.com/stephanegranger ...............Second life (41-49): stock fund manager...... Third life (55-?): living with ALS......... Afterlife: ready to go peacefully.......... Married, 3 children(born 80,83,87)... I've been practicing breating exercices since october 2010 (yoga pranayama)... I started vitamines on April 2011, LDN, detoxifier & antioxydants from september/november 2011 It helped me a lot, I experienced some improvements!

Profile Activity
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Member since: Jul 02, 2011 Last Login Jul 24, 2012

More About cinéphile 94

April 2011

one hour of magnétic healer. 4 days later, I felt less tired. Combine with giving up rilutek (on march,31,2011),I've more appetite and a better sleep.Every week for several months he worked on me from a distance! I've been full of energy ever since.I've added some vitamines and an anti-inflammatory (Tic-tox). I've been feeling much better ever since.

september/october

I've added LDN to boost my immune system, grape seed extract, Zinc (antioxydants ) and a liver detoxifier following this australian PALS'advices : http://home.goulburn.net.au/~shackel/introduction.htm . I'm feeling even better.Some strengh is coming back in some of my muscles!

january,28,2012

My speech therapist has told me that the volume of my neck's muscles have increased!!!(I knew that my neck was stronger, but an increase in volume !!!) For me it means that ALS is reversible!!!

March/April

unfortunately I'm losing my voice. While some improvements in my arms and legs are going on from month to month, my breathing is getting worse: I need the Bi-Pap 22h/24 now...