- sarahezekiel
- Sex: F
- Data Quality: 2 stars
- ALS: 12 yrs
- Bulbar: moderate
- Arms: severe
- Chest: none
- Legs: moderate
- sarahezekiel
- Female, 46 years
- London , United Kingdom
- Primary Condition
- ALS
- First symptom
- Feb 2000
- Diagnosis
- Apr 2000
About sarahezekiel
I was diagnosed whilst pregnant with my second child. I'm now divorced and live with my children, aged 14 & 11. After an initial rapid progression I'm stable now and lead an active life. I'm still able to walk with assistance but cannot use my arms. I have 24 hour care, funded by my local council. I use a Tobii PCEye eyegaze computer and really love it! I try not to think about my illness and live life as normally as possible. I enjoy writing and giving presentations to raise awareness of MND/ALS. Please read more about me here: http://www.sarahezekiel.co
ALS Public Registry
- Profile Activity
- 7431 Views
- My CareTeam
More About sarahezekiel
Wheelchair Smiley by Simon Donnelly, November 2006
Computer with chin switch
Transport awareness poster, Tottenham Court Road tube station, 12/06/09
London Jewish News Community Hero 2010