33353-full
debradebbiedeb
Data Quality: 1 star
  • Sex: Female
  • Age: 43y
Condition: POTS 8 additional condition(s)
Quality of Life:
  • Mental: Moderate
  • Physical: Mild
I am: Bad
debradebbiedeb
Female, 43 years
San Jose, CA
Primary Condition
POTS and 8 more
First symptom
Diagnosis

About debradebbiedeb

Hello. I was recently diagnosed with Hypogammaglobulinemia, POTS, CFS, a high IgE and a low IgG count. I've been sick for over a year. I wish more doctors knew about dysautonomia and all of the wacky symptoms that I have. I'm tired and confused and looking for answers. But still smiling, for the most part. :o) I am a mom and a teacher and a director of a preschool. I love singing and theatre and art and a discontinued tv show called 3rd Rock from the Sun. I'm wacky. But that's not diagnosable, and apparently, for that there is no cure. :o) Allow me to introduce myself virtually: http://www.youtube.com/watch?v=9M8SUoa056s&feature=ll_lolz&playnext=1&list=LL-ZuRQGemuZs

Profile Activity
2,090 Views
Member since: May 11, 2011 Last Login Jun 12, 2011

Other Conditions

  1. ADHD (Attention Deficit/Hyperactivity Disorder)
    First symptom
    Diagnosis
  2. CVID (Common Variable Immunodeficiency Disorder)
    First symptom
    Diagnosis
  3. Chronic Fatigue Syndrome
    First symptom
    Diagnosis
  4. Dysautonomia
    First symptom
    Diagnosis
  5. Generalized Anxiety Disorder
    First symptom
    Diagnosis
  6. Major Depressive Disorder
    First symptom
    Diagnosis
  7. PTSD (Post Traumatic Stress Disorder)
    First symptom
    Diagnosis
  8. Post Concussion Syndrome
    First symptom
    Diagnosis

More About debradebbiedeb

I was in a car accident on January 25, 2010.  I had a concussion and a back and neck injury.  None of my injuries were outwardly visible at the time of the accident.  But over time I got progressively worse as symptoms worsened and became what I call "whole body".  While I had symptoms for Postural Orthostatic Tachycardia, I was told for a long time that I was anxious or depressed or that symptoms had to do with the concussion.  The big boom for recognizing POTS, I think was on December 22nd when I became unconscious after drinking alcohol at a Christmas party.  (But I had not had enough to have rendered me unconscious.)  I was referred to an amazing doctor who figured me out.  He does research on the very things I'm experiencing.  Since the car accident, I've been diagnosed with Post Concussion Syndrome, pinched nerves in my neck and lower back, (I'm not a doc but I suspect the neck injury that's right at my vasovagal nerve is what ignited the dysautonomia. No doc will listen to this though.) Postural Orthostatic Tachycardia and Chronic Fatigue.  I just got labs back that show I have a low IgG and I already know I have a high IgE.  My body is fighting allergy to some foods and redwood trees but not doing much to fight viruses.  Oh and refined sugar and simple carbs make me super sick!  That's nuts! I've tested positive for a handful of viruses but it isn't clear if they are current or past infections.  Since i am producing a deficit of antibodies, how will they know if I'm infected since the test for viruses is a detection of antibodies? I've lost 80 pounds in the last year and put ten back on since being on medical leave for a month. Originally gained 15 but lost 5 again.  Argh.  (I started drinking half and half and lying around...10 pounds for the WIN!) I can't wait to get back to work.  My mind is turning to GOO. I have depression and anxiety (I did get those diagnosed, as well as PTSD.)  BUT the depression and anxiety are not ongoing, it comes and goes with symptoms of POTS and I just happen to also be in the small percentage of people who gets just about every black box warning adverse side effect from medication.  Anti depressants render me incapable and suicidal.  I kid you not.  I think I can be fixed but it's going to be much like wiggling a huge awkward piece of furniture out of a very small door thats on a tight hallway turn down some stairs.  Not easy but one part at a time...and with balance. I can deal with the physical stuff, no problem,  it's keeping the good attitude and not freaking out that's key.  Unless I have energy and hope, I ain't going to make it.  This is hard work!  I have this fear that because I'm sick and not working...I'm no longer a contributing member of society and the docs will just give up on me.  Some days, I look like a hopeless mess.  I hope they keep seeing my potential so i can continue down my path to make my little corner of the world a better place.  :o)