Tom M's Journal

Tom M: Sex: M; Data Quality: 3 stars; ALS: 6 yrs; Bi-Pap Wheelchair; Bulbar: none; Arms: moderate; Chest: moderate; Legs: severe

Tom M: Male, 56 years; Anaheim, CA

Primary Condition: ALS and 2 more ▼

First symptom: Jun 2007
Diagnosis: Aug 2008

Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
FRS: 22
- none Head
- moderate Arms
- moderate Torso
- severe Legs
Tom M completed the FRS survey for May 30, 2013 May 30, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

160 lb BMI: 21.7
Tom M updated his weight for May 14, 2013 May 14, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

FVC: 75%

Tom M completed the FVC survey for May 14, 2013 May 14, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Diaphragm Pacing Implant
- - Started: Apr 11, 2012
  - Current Dosage: 10 hr daily
- Purpose: ALS
- View Latest Evaluation
Tom M updated the treatment Diaphragm Pacing Implant May 14, 2013
- Added
  - Started: Apr 11, 2012
  - Dosage: 2 hr daily
  - Purpose: ALS (Amyotrophic Lateral Sclerosis)
  - Apr 11, 2012
- Changed Dosage
  - Dosage: 16 hr daily
  - Apr 16, 2012
- Evaluated
  - View Evaluation
  - Apr 24, 2012
- Evaluated
  - View Evaluation
  - Jun 18, 2012
- Changed Dosage
  - Dosage: 23 hr daily
  - Jul 11, 2012
- Evaluated
  - View Evaluation
  - Aug 30, 2012
- Changed Dosage
  - Dosage: 14 hr daily
  - Nov 25, 2012
- Evaluated
  - View Evaluation
  - Dec 03, 2012
- Changed Dosage
  - Dosage: 10 hr daily
  - Mar 15, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

53 cm H2O

Tom M added a new Negative Inspiratory Force value for Feb 12, 2013 May 14, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

29 cm H2O

Tom M added a new Negative Inspiratory Force value for May 14, 2013 May 14, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

3 stars
Tom M earned a star! May 14, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

2 stars
Tom M lost a star May 13, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
Tom M completed the QOL survey for Apr 30, 2013 Apr 30, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
FRS: 21
- none Head
- moderate Arms
- moderate Torso
- severe Legs
Tom M completed the FRS survey for Apr 30, 2013 Apr 30, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Jun 1, 2007
- Diagnosis: Aug 1, 2008
Tom M updated the condition ALS (Amyotrophic Lateral Sclerosis) Apr 30, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- severe Weakness in legs
- moderate Weakness in hands
- moderate Weakness in arms
- severe Walking problems
- none Stress
- none Stiffness/Spasticity
- mild Pain
- none Lethargy
- none Insomnia
- severe Foot drop
- mild Fatigue
- mild Fasciculations
- none Excess saliva
- none Excessive yawning
- none Excessive daytime sleepiness (somnolence)
- none Emotional lability
- mild Dry skin
- mild Depressed mood
- moderate Cramps
- mild Constipation
- mild Cold intolerance
- moderate Breathing difficulty
- none Blood Clot
- severe Balance problems
- none Anxious mood
- See more
Tom M updated his symptoms for Apr 30, 2013 Apr 30, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

3 stars
Tom M earned a star! Apr 30, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

2 stars
Tom M lost a star Mar 31, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
FRS: 23
- none Head
- moderate Arms
- moderate Torso
- severe Legs
Tom M completed the FRS survey for Mar 1, 2013 Mar 02, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

166 lb BMI: 22.5
Tom M updated his weight for Feb 12, 2013 Feb 13, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

FVC: 48%

Tom M completed the FVC survey for Feb 12, 2013 Feb 12, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
FRS: 21
- none Head
- moderate Arms
- moderate Torso
- severe Legs
Tom M completed the FRS survey for Jan 30, 2013 Jan 30, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- severe Weakness in legs
- moderate Weakness in hands
- moderate Weakness in arms
- severe Walking problems
- none Stress
- none Stiffness/Spasticity
- mild Pain
- none Lethargy
- none Insomnia
- severe Foot drop
- mild Fatigue
- mild Fasciculations
- none Excess saliva
- none Excessive yawning
- none Excessive daytime sleepiness (somnolence)
- none Emotional lability
- mild Dry skin
- mild Depressed mood
- mild Cramps
- mild Constipation
- mild Cold intolerance
- moderate Breathing difficulty
- none Blood Clot
- severe Balance problems
- none Anxious mood
- See more
Tom M updated his symptoms for Jan 30, 2013 Jan 30, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

41 cm H2O

Tom M added a new Negative Inspiratory Force value for Nov 27, 2012 Jan 06, 2013
Show more

About Tom M

Other Conditions

FRS: 22

160 lb BMI: 21.7

FVC: 75%

Diaphragm Pacing Implant

Negative Inspiratory Force:

53 cm H2O

Negative Inspiratory Force:

29 cm H2O

QOL

FRS: 21

ALS (Amyotrophic Lateral Sclerosis)

Symptom Update

FRS: 23

166 lb BMI: 22.5

FVC: 48%

FRS: 21

Symptom Update

Negative Inspiratory Force:

41 cm H2O

About Tom M

Other Conditions

FRS: 22

160 lb BMI: 21.7

FVC: 75%

Diaphragm Pacing Implant

Negative Inspiratory Force: 53 cm H2O

Negative Inspiratory Force: 29 cm H2O

QOL

FRS: 21

ALS (Amyotrophic Lateral Sclerosis)

Symptom Update

FRS: 23

166 lb BMI: 22.5

FVC: 48%

FRS: 21

Symptom Update

Negative Inspiratory Force: 41 cm H2O

Negative Inspiratory Force:

53 cm H2O

Negative Inspiratory Force:

29 cm H2O

Negative Inspiratory Force:

41 cm H2O