Tom M's Journal

Tom M: Sex: M; Data Quality: 3 stars; ALS: 5 yrs; Bi-Pap Wheelchair; Bulbar: none; Arms: moderate; Chest: moderate; Legs: severe

Tom M: Male, 56 years; Anaheim, CA

Primary Condition: ALS and 2 more ▼

First symptom: Jun 2007
Diagnosis: Aug 2008

Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

47 cm H2O

Tom M added a new Negative Inspiratory Force value for Jul 31, 2012 Jan 06, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

37 cm H2O

Tom M added a new Negative Inspiratory Force value for May 29, 2012 Jan 06, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

48 cm H2O

Tom M added a new Negative Inspiratory Force value for Mar 12, 2012 Jan 06, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

46 cm H2O

Tom M added a new Negative Inspiratory Force value for Jan 10, 2012 Jan 06, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

48 cm H2O

Tom M added a new Negative Inspiratory Force value for Oct 11, 2011 Jan 06, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

47 cm H2O

Tom M added a new Negative Inspiratory Force value for Jun 27, 2011 Jan 06, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

Negative Inspiratory Force:

58 cm H2O

Tom M added a new Negative Inspiratory Force value for May 30, 2011 Jan 06, 2013
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
FRS: 21
- none Head
- moderate Arms
- moderate Torso
- severe Legs
Tom M completed the FRS survey for Dec 31, 2012 Dec 31, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Flonase Nasal Spray
- - Started: Dec 5, 2012
  - Current Dosage: 0.05mg/inh as needed
- Purpose:
Tom M updated the treatment Flonase Nasal Spray Dec 31, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Baclofen
- - Stopped: Dec 20, 2012
  - Reason: Did not seem to work
  - Started: Dec 5, 2012
  - Last Dosage: 10 mg daily
- Purpose: ALS
Tom M updated the treatment Baclofen Dec 31, 2012
- Added
  - Started: Dec 05, 2012
  - Dosage: 10 mg daily
  - Purpose: ALS (Amyotrophic Lateral Sclerosis)
  - Dec 05, 2012
- Changed Dosage
  - Dosage: 10 mg daily
  - Dec 15, 2012
- Stopped
  - Date: Dec 20, 2012
  - Reason: Did not seem to work
  - Dec 20, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- none Anxious mood
- severe Balance problems
- none Blood Clot
- mild Breathing difficulty
- mild Cold intolerance
- moderate Constipation
- mild Cramps
- mild Depressed mood
- mild Dry skin
- none Emotional lability
- none Excessive daytime sleepiness (somnolence)
- none Excessive yawning
- none Excess saliva
- mild Fasciculations
- moderate Fatigue
- severe Foot drop
- none Insomnia
- none Lethargy
- mild Pain
- mild Stiffness/Spasticity
- none Stress
- severe Walking problems
- moderate Weakness in arms
- moderate Weakness in hands
- severe Weakness in legs
- See more
Tom M updated his symptoms for Dec 31, 2012 Dec 31, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Diaphragm Pacing Implant Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
- Side Effects: Moderate
- Adherence: Always
- Burden: Not at all
Advice & Tips

After a trip to Maui where I found it difficult to relax, I realized there is a general level of discomfort and anxiety when I have the pacer on. On a trial basis, I'm cutting my usage to about 14 hours/day, from 6pm-8am. So far, after about a week of this usage I am feeling better during the day.

Cost

< $25 monthly

Tom M added a treatment evaluation for Diaphragm Pacing Implant Dec 03, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
Tom M completed the QOL survey for Nov 30, 2012 Nov 30, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
FRS: 22
- none Head
- moderate Arms
- moderate Torso
- severe Legs
Tom M completed the FRS survey for Nov 30, 2012 Nov 30, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Influenza Vaccine-Flu Shot
- - Started: Nov 4, 2008
  - Current Dosage: yearly
- Purpose: General health
Tom M updated the treatment Influenza Vaccine-Flu Shot Nov 30, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- mild Anxious mood
- severe Balance problems
- none Blood Clot
- mild Breathing difficulty
- mild Cold intolerance
- mild Constipation
- mild Cramps
- mild Depressed mood
- mild Dry skin
- none Emotional lability
- none Excessive daytime sleepiness (somnolence)
- none Excessive yawning
- none Excess saliva
- mild Fasciculations
- moderate Fatigue
- severe Foot drop
- none Insomnia
- none Lethargy
- mild Pain
- mild Stiffness/Spasticity
- none Stress
- severe Walking problems
- moderate Weakness in arms
- severe Weakness in hands
- severe Weakness in legs
- See more
Tom M updated his symptoms for Nov 30, 2012 Nov 30, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

170 lb BMI: 23.1
Tom M updated his weight for Nov 27, 2012 Nov 28, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS

FVC: 49%

Tom M completed the FVC survey for Nov 27, 2012 Nov 28, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
FRS: 21
- none Head
- moderate Arms
- moderate Torso
- severe Legs
Tom M completed the FRS survey for Sep 30, 2012 Sep 30, 2012
Tom M

Sex: M

Data Quality: 3 stars

Bulbar: none

Arms: moderate

Chest: moderate

Legs: severe

I am: g

I have:
ALS
Symptom Update
- mild Anxious mood
- severe Balance problems
- none Blood Clot
- mild Breathing difficulty
- mild Cold intolerance
- none Constipation
- mild Cramps
- mild Depressed mood
- none Dry skin
- none Emotional lability
- none Excessive daytime sleepiness (somnolence)
- none Excessive yawning
- none Excess saliva
- mild Fasciculations
- mild Fatigue
- severe Foot drop
- none Insomnia
- none Lethargy
- mild Pain
- mild Stiffness/Spasticity
- none Stress
- severe Walking problems
- moderate Weakness in arms
- severe Weakness in hands
- severe Weakness in legs
- See more
Tom M updated his symptoms for Sep 30, 2012 Sep 30, 2012
Show more

About Tom M

Other Conditions

Negative Inspiratory Force:

47 cm H2O

Negative Inspiratory Force:

37 cm H2O

Negative Inspiratory Force:

48 cm H2O

Negative Inspiratory Force:

46 cm H2O

Negative Inspiratory Force:

48 cm H2O

Negative Inspiratory Force:

47 cm H2O

Negative Inspiratory Force:

58 cm H2O

FRS: 21

Flonase Nasal Spray

Baclofen

Symptom Update

Diaphragm Pacing Implant Treatment Evaluation

QOL

FRS: 22

Influenza Vaccine-Flu Shot

Symptom Update

170 lb BMI: 23.1

FVC: 49%

FRS: 21

Symptom Update

About Tom M

Other Conditions

Negative Inspiratory Force: 47 cm H2O

Negative Inspiratory Force: 37 cm H2O

Negative Inspiratory Force: 48 cm H2O

Negative Inspiratory Force: 46 cm H2O

Negative Inspiratory Force: 48 cm H2O

Negative Inspiratory Force: 47 cm H2O

Negative Inspiratory Force: 58 cm H2O

FRS: 21

Flonase Nasal Spray

Baclofen

Symptom Update

Diaphragm Pacing Implant Treatment Evaluation

QOL

FRS: 22

Influenza Vaccine-Flu Shot

Symptom Update

170 lb BMI: 23.1

FVC: 49%

FRS: 21

Symptom Update

Negative Inspiratory Force:

47 cm H2O

Negative Inspiratory Force:

37 cm H2O

Negative Inspiratory Force:

48 cm H2O

Negative Inspiratory Force:

46 cm H2O

Negative Inspiratory Force:

48 cm H2O

Negative Inspiratory Force:

47 cm H2O

Negative Inspiratory Force:

58 cm H2O