jaws-als's Journal

jaws-als: Sex: M; Data Quality: 2 stars; ALS: 2 yrs; Bi-Pap Feeding tube; Bulbar: moderate; Arms: severe; Chest: moderate; Legs: moderate

jaws-als: Male, 45 years; Harrisburg, PA

Primary Condition: ALS and 1 more ▼

First symptom: Aug 2010
Diagnosis: Mar 2011

Interests: Advocacy, Alternative Medicine and 6 more ▼

jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Very good
jaws-als added an InstantMe for Apr 18, 2013 Apr 18, 2013 8:42PM
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

2 stars
jaws-als lost a star Apr 09, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
QOL
- Best Social
- Best Mental
- Worst Physical
jaws-als completed the QOL survey for Apr 6, 2013 Apr 06, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Very good
jaws-als added an InstantMe for Apr 6, 2013 Apr 06, 2013 5:30PM
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Very good
jaws-als added an InstantMe for Apr 5, 2013 Apr 05, 2013 8:54AM
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Hearing Loss
- First symptom: Dec 1, 2001
- Diagnosis: Jan 11, 2011
jaws-als updated the condition Hearing Loss Apr 05, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

177 lb BMI: 25.4
jaws-als updated his weight for Feb 13, 2013 Feb 24, 2013

2 to 3 500 calorie cans of Nutren a day, plus 2 to 3 700 calorie green smoothies
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

FVC: 29%

jaws-als completed the FVC survey for Feb 13, 2013 Feb 24, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Very good
jaws-als added an InstantMe for Feb 24, 2013 Feb 24, 2013 3:32PM
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Very good
jaws-als added an InstantMe for Feb 7, 2013 Feb 07, 2013 12:26PM
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Neutral
jaws-als added an InstantMe for Feb 5, 2013 Feb 05, 2013 4:26PM

a bit of a headache today
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
FRS: 10
- moderate Head
- severe Arms
- moderate Torso
- moderate Legs
jaws-als completed the FRS survey for Feb 5, 2013 Feb 05, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
QOL
- Good Social
- Best Mental
- Worst Physical
jaws-als completed the QOL survey for Feb 5, 2013 Feb 05, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Aug 1, 2010
- Diagnosis: Mar 3, 2011
jaws-als updated the condition ALS (Amyotrophic Lateral Sclerosis) Feb 05, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

3 stars
jaws-als earned a star! Feb 05, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

2 stars
jaws-als lost a star Jan 25, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

Very good
jaws-als added an InstantMe for Jan 9, 2013 Jan 09, 2013 5:27PM

I'm still here.
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
FRS: 14
- mild Head
- severe Arms
- moderate Torso
- moderate Legs
jaws-als completed the FRS survey for Jan 9, 2013 Jan 09, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS
Symptom Update
- mild Abdominal bloating
- none Allergies
- none Anxious mood
- severe Atrophy of forearm muscles
- severe Atrophy of hand muscles
- severe Atrophy of shoulder muscles
- moderate Auditory Processing Deficit
- mild Back pain
- moderate Constipation
- none Cramps
- moderate Insomnia
- none Mouth sores (ulcers)
- See more
jaws-als updated his symptoms for Jan 9, 2013 Jan 09, 2013
jaws-als

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: severe

Chest: moderate

Legs: moderate

I am: vg

I have:
ALS

3 stars
jaws-als earned a star! Jan 09, 2013
Show more

About jaws-als

Interests

Other Conditions

Very good

QOL

Very good

Very good

Hearing Loss

177 lb BMI: 25.4

FVC: 29%

Very good

Very good

Neutral

FRS: 10

QOL

ALS (Amyotrophic Lateral Sclerosis)

Very good

FRS: 14

Symptom Update