- hummingbird
- Sex: F
- Data Quality: 3 stars
- MS: 22 yrs
- Type: Relapsing-Remitting
- Sensation: Moderate
- Overall: Mild
- Cognition: moderate
- Vision: moderate
- Speech: mild
- Swallowing: none
- Upper limb: none
- Walking: none
- hummingbird
- Female, 44 years
- CA, United States
More About hummingbird
I was shocked (a bit) to see that I have technically had MS for over 20 years. I had ON in 1990, but no other symptoms until 1999. From 1999 until 2005 my symptoms were mild and seemed unrelated. In fact, in 2004 I laughed at a urologist for suggesting I get checked for MS.
I had a bad exacerbation at the end of 2005 which I never received treatment for. It took 5 different neurologists in 6 months to get a 'probable MS' diagnosis, and eventually get diagnosed with MS. The first three doctors thought I was crazy for suggesting that I had MS.
We were talking about adopting a girl in 2005 right before I got sick. We are now in the matching process for a girl under the age of 3.
Up until recently I worked part time as a pharmacist, but I was laid off. It's hard to find a decent part time job. After my last job, I know that I could not hold down a full time job very easily. I have a new MS doctor and he will do some cognitive testing soon to see if I can continue to work.