pmotion
pmotion
Sex: M
Data Quality: 3 stars
ALS: 2 yrs
Bulbar: moderate
Arms: moderate
Chest: mild
Legs: moderate
pmotion
Male, 52 years
Monnickendam, Netherlands
Primary Condition
ALS
First symptom
Dec 2009
Diagnosis
Aug 2010
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pmotion's Riluzole is for:

  • ALS

pmotion's side effects of Riluzole:

pmotion's Riluzole History (Stopped)
100 mg Daily Aug 27, 2010 - Dec 20, 2011
Stopped Did not seem to work, Other, and Side effects too severe Dec 20, 2011
Evaluations
Date Dosage ALS (Amyotrophic Lateral Sclerosis) Efficacy Side Effects Adherence Burden
Dec 20, 2011 100 mg Daily ? MildMildMildMild AlwaysAlwaysAlwaysAlways Not at allNot at allNot at allNot at all
Date
Dec 20, 2011
Advice & Tips
I stopped with Rilutek because I want to be fitter for the time I have left. I am now using vitamine D and feeling better than with Rilutek. Rilutek just is not the thing for me, why living 3 months longer at the end when your a wreck?
Cost
< $25 monthly

About Riluzole (Prescription Drug)

Riluzole is the first drug to be approved for amyotrophic lateral sclerosis (ALS). Riluzole, available as Rilutek®, does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

Learn more about Riluzole in our Riluzole Community Report.

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