ALS Public Registry
same symptoms for a few weeks now with no more degradation (I think)
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Nov 2, 2011 Nov 02, 2011 8:38PMGood
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Aug 30, 2011 Aug 30, 2011 8:03PMNeutral
Feet are getting worse. Numbness is spreading from bottoms up the sides
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Mar 9, 2011 Mar 10, 2011 12:57AMGood
New dx of CMT instead of ALS. I have a life again!
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 28, 2011 Mar 01, 2011 12:52AMGood
Lots of twitching but I had an extra day off and it seems like the extra de-stressing has helped. Walking still feels not quite right though
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 27, 2011 Feb 27, 2011 9:44PMNeutral
good 2 hour walk today and I'm not going into the shop tomorrow. Makes for a LOT less stress. legs are still at pre-cramping stage.
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 25, 2011 Feb 25, 2011 10:37AMNeutral
tightness (pre-cramping) in back of both legs. constant for a couple of weeks now is a continual reminder that spasticity is coming
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 24, 2011 Feb 24, 2011 4:26PMNeutral
no cramps
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 24, 2011 Feb 24, 2011 9:52AMNeutral
No cramps yet! just the fasciculations
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 23, 2011 Feb 24, 2011 12:52AMBad
fingers cramping
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 22, 2011 Feb 22, 2011 9:22PMNeutral
LOTS of twitching in legs and arms
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 21, 2011 Feb 21, 2011 9:14PMNeutral
Went for a walk in the redwoods and was definitely aware of the legs becoming more unsteady and the muscles wanting to tighten up.
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 20, 2011 Feb 20, 2011 11:46AMBad
scared. feels like the legs are starting to go
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 19, 2011 Feb 19, 2011 11:36PMNeutral
more twitching, more hand cramping, legs have been wanting to start cramping
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 18, 2011 Feb 18, 2011 11:09PMNeutral
long, COLD day at work
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 17, 2011 Feb 18, 2011 12:08AMNeutral
been reading the forums for 3 hours emoticon smile
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 17, 2011 Feb 17, 2011 10:41PMGood
not thinking disease
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 16, 2011 Feb 17, 2011 1:11AMGood
took my oxazepam
-
- vsglobal
- Data Quality: 1 star
-
- Sex: M
- Age: 66
- Condition: Charcot Marie Tooth 3 additional condition(s)
-
Quality of Life:
- Mental: Mild
- Physical: None
- I am: g
I have:Charcot Marie Toothvsglobal added an InstantMe for Feb 16, 2011 Feb 16, 2011 11:41PMNeutral
worry about fasciculations and the future