slim18's Journal

slim18: Sex: M; Data Quality: 2 stars; ALS: 4 yrs; Bi-Pap Wheelchair; Bulbar: moderate; Arms: moderate; Chest: moderate; Legs: moderate

slim18: Male, 68 years; Blenheim, Marlborough

Primary Condition: ALS and 2 more ▼

First symptom: Jan 2009
Diagnosis: Jun 2010

slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Pinorax
- - Stopped: Oct 25, 2012
  - Reason: Did not seem to work and Side effects too severe
  - Started: Sep 1, 2012
  - Last Dosage: 10 mg daily
- Purpose: Constipation
- View Latest Evaluation
slim18 updated the treatment Pinorax Mar 17, 2013
- Added
  - Started: Sep 01, 2012
  - Dosage: 5 mg daily
  - Purpose: Constipation
  - Sep 01, 2012
- Stopped
  - Date: Sep 29, 2012
  - Reason: Did not seem to work and Side effects too severe
  - Sep 29, 2012
- Stopped
  - Date: Oct 01, 2012
  - Reason: Course of treatment ended and Side effects too severe
  - Oct 01, 2012
- Stopped
  - Date: Oct 02, 2012
  - Reason: Did not seem to work and Side effects too severe
  - Oct 02, 2012
- Restarted
  - Dosage: 10 mg daily
  - Oct 10, 2012
- Evaluated
  - View Evaluation
  - Oct 25, 2012
- Stopped
  - Date: Oct 25, 2012
  - Reason: Did not seem to work and Side effects too severe
  - Oct 25, 2012
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- mild Acid reflux
- moderate Atrophy of calf muscles
- moderate Atrophy of left arm muscles
- moderate Atrophy of left hand muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of right arm muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right shoulder muscles
- mild Bladder problems
- mild Bowel irritability
- none Chest pain
- none Chest pressure
- moderate Constipation
- moderate Edema in lower extremities
- mild Elevated blood pressure
- mild Excessive yawning
- mild Excess mucus
- moderate Excess saliva
- severe Falls
- severe Fasciculations
- severe Fatigue
- none feels like mini seizures or strokes
- mild Joint crackling (crepitus)
- severe Loss of balance
- severe loss of facial muscles
- severe Loss of fine motor skills
- none Lung infection
- severe Mobility decreased
- mild Mucus in throat
- moderate Muscle soreness
- mild Muscle spasms
- moderate Nerve pain (neuralgia)
- severe Numbness and Tingling with Pins and Needles
- moderate Pain in knees
- mild Persistent cough or wheeze
- moderate Shortness of breath (dyspnea)
- mild Sleep problems
- moderate Tongue twitching (fasciculations)
- severe Weakness in legs
- severe Weakness in thigh muscles
- See more
slim18 updated his symptoms for Mar 18, 2013 Mar 17, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

Good
slim18 added an InstantMe for Feb 20, 2013 Feb 20, 2013 1:40AM

just cruising on my powerchair
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
FRS: 15
- moderate Head
- moderate Arms
- moderate Torso
- moderate Legs
slim18 completed the FRS survey for Feb 20, 2013 Feb 20, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Jan 24, 2009
- Diagnosis: Jun 24, 2010
slim18 updated the condition ALS (Amyotrophic Lateral Sclerosis) Feb 20, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

Blood Pressure

Systolic

128 mmHg

Diastolic

78 mmHg

slim18 added a new Blood Pressure value for Feb 20, 2013 Feb 20, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

3 stars
slim18 earned a star! Feb 20, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

2 stars
slim18 lost a star Feb 06, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

226 lb 10 oz BMI: 32.5
slim18 updated his weight for Jan 15, 2013 Jan 18, 2013

eating smaller meals avoiding some foods in regards getting stuck in throat etc. it would be the first xmas period that i have lost weightt probably ever
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

Bad
slim18 added an InstantMe for Jan 19, 2013 Jan 18, 2013 8:07PM

my FVC has fallen to 43% still awaiting sleep test for BIPAPwhich i hope me
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
slim18 completed the QOL survey for Jan 19, 2013 Jan 18, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
FRS: 17
- moderate Head
- moderate Arms
- mild Torso
- moderate Legs
slim18 completed the FRS survey for Apr 18, 2012 Jan 18, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
FRS: 17
- moderate Head
- moderate Arms
- mild Torso
- moderate Legs
slim18 completed the FRS survey for Jan 19, 2013 Jan 18, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

FVC: 43%

slim18 completed the FVC survey for Jan 16, 2013 Jan 18, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- mild Acid reflux
- moderate Atrophy of calf muscles
- severe Atrophy of left arm muscles
- severe Atrophy of left hand muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of right arm muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right shoulder muscles
- none Bladder problems
- mild Bowel irritability
- mild Chest pain
- mild Chest pressure
- mild Constipation
- moderate Edema in lower extremities
- none Elevated blood pressure
- moderate Excessive yawning
- moderate Excess mucus
- moderate Excess saliva
- severe Falls
- moderate Fasciculations
- severe Fatigue
- none feels like mini seizures or strokes
- moderate Joint crackling (crepitus)
- severe Loss of balance
- moderate loss of facial muscles
- severe Loss of fine motor skills
- none Lung infection
- severe Mobility decreased
- moderate Mucus in throat
- moderate Muscle soreness
- moderate Muscle spasms
- moderate Nerve pain (neuralgia)
- severe Numbness and Tingling with Pins and Needles
- moderate Pain in knees
- none Persistent cough or wheeze
- moderate Shortness of breath (dyspnea)
- none Sleep problems
- moderate Tongue twitching (fasciculations)
- severe Weakness in legs
- severe Weakness in thigh muscles
- See more
slim18 updated his symptoms for Jan 19, 2013 Jan 18, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

Blood Pressure

Systolic

130 mmHg

Diastolic

78 mmHg

Location (optional)

Left arm

Position (optional)

Sitting

slim18 added a new Blood Pressure value for Jan 19, 2013 Jan 18, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- mild Acid reflux
- severe Atrophy of calf muscles
- severe Atrophy of left arm muscles
- severe Atrophy of left hand muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of right arm muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right shoulder muscles
- mild Bladder problems
- mild Bowel irritability
- mild Chest pain
- mild Chest pressure
- mild Constipation
- moderate Edema in lower extremities
- none Elevated blood pressure
- mild Excessive yawning
- mild Excess mucus
- mild Excess saliva
- severe Falls
- moderate Fasciculations
- severe Fatigue
- none feels like mini seizures or strokes
- mild Joint crackling (crepitus)
- severe Loss of balance
- moderate loss of facial muscles
- severe Loss of fine motor skills
- none Lung infection
- severe Mobility decreased
- mild Mucus in throat
- severe Muscle soreness
- moderate Muscle spasms
- moderate Nerve pain (neuralgia)
- moderate Numbness and Tingling with Pins and Needles
- moderate Pain in knees
- none Persistent cough or wheeze
- moderate Shortness of breath (dyspnea)
- none Sleep problems
- mild Tongue twitching (fasciculations)
- severe Weakness in legs
- severe Weakness in thigh muscles
- See more
slim18 updated his symptoms for Jan 5, 2013 Jan 05, 2013
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
QOL
- Good Social
- Bad Mental
- Bad Physical
slim18 completed the QOL survey for Dec 30, 2012 Dec 29, 2012
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

FVC: 45%

slim18 completed the FVC survey for Dec 19, 2012 Dec 19, 2012
slim18

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
FRS: 17
- moderate Head
- moderate Arms
- mild Torso
- moderate Legs
slim18 completed the FRS survey for Dec 20, 2012 Dec 19, 2012
Show more

About slim18

Other Conditions

Pinorax

Symptom Update

Good

FRS: 15

ALS (Amyotrophic Lateral Sclerosis)

Blood Pressure

226 lb 10 oz BMI: 32.5

Bad

QOL

FRS: 17

FRS: 17

FVC: 43%

Symptom Update

Blood Pressure

Symptom Update

QOL

FVC: 45%

FRS: 17