slim18's Journal

slim18: Sex: M; Data Quality: 3 stars; ALS: 4 yrs; Bi-Pap Wheelchair; Bulbar: moderate; Arms: moderate; Chest: moderate; Legs: moderate

slim18: Male, 68 years; Blenheim, Marlborough

Primary Condition: ALS and 2 more ▼

First symptom: Jan 2009
Diagnosis: Jun 2010

slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
slim18 completed the QOL survey for Jun 10, 2013 Jun 09, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Roxithromycin Treatment Evaluation
- Perceived effectiveness for Persistent cough or wheeze: Moderate
- Perceived effectiveness for Mucus in throat: Moderate
- Side Effects: None
- Adherence: Always
- Burden: A little
slim18 added a treatment evaluation for Roxithromycin from Nov 8, 2012 Jun 09, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
FRS: 15
- moderate Head
- moderate Arms
- moderate Torso
- moderate Legs
slim18 completed the FRS survey for Jun 10, 2013 Jun 09, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Roxithromycin
- - Stopped: Nov 08, 2012
  - Reason: Course of treatment ended
  - Started: Oct 30, 2012
  - Last Dosage: 300 mg daily
- Purpose: Mucus in throat and Persistent cough or wheeze
- View Latest Evaluation
slim18 updated the treatment Roxithromycin Jun 09, 2013
- Evaluated
  - View Evaluation
  - Aug 10, 2011
- Stopped
  - Date: Aug 10, 2011
  - Reason: Course of treatment ended
  - Aug 10, 2011
- Evaluated
  - View Evaluation
  - Aug 08, 2012
- Added
  - Started: Oct 30, 2012
  - Dosage: 300 mg daily
  - Purpose: Mucus in throat, Persistent cough or wheeze, and Lung infection
  - Oct 30, 2012
- Stopped
  - Date: Nov 08, 2012
  - Reason: Course of treatment ended
  - Nov 08, 2012
- Evaluated
  - View Evaluation
  - Nov 08, 2012
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- moderate Atrophy of calf muscles
- severe Weakness in thigh muscles
- moderate Weakness in legs
- moderate Tongue twitching (fasciculations)
- none Sleep problems
- moderate Shortness of breath (dyspnea)
- none Persistent cough or wheeze
- moderate Pain in knees
- severe Numbness and Tingling with Pins and Needles
- mild Nerve pain (neuralgia)
- moderate Muscle spasms
- moderate Muscle soreness
- mild Mucus in throat
- severe Mobility decreased
- none Lung infection
- severe Loss of fine motor skills
- mild loss of facial muscles
- severe Loss of balance
- mild Joint crackling (crepitus)
- none feels like mini seizures or strokes
- severe Fatigue
- moderate Fasciculations
- mild Falls
- mild Excess saliva
- mild Excess mucus
- mild Excessive yawning
- none Elevated blood pressure
- severe Edema in lower extremities
- moderate Constipation
- none Chest pressure
- none Chest pain
- moderate Breathing difficulty
- mild Bowel irritability
- none Bladder problems
- severe Atrophy of right shoulder muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right arm muscles
- severe Atrophy of left shoulder muscles
- severe Atrophy of left hand muscles
- moderate Atrophy of left arm muscles
- mild Acid reflux
- See more
slim18 updated his symptoms for Jun 10, 2013 Jun 09, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

FVC: 37%

slim18 completed the FVC survey for May 22, 2013 May 25, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Bidet
- - Started: May 25, 2011
  - Current Dosage: as needed
- Purpose: Atrophy of upper body muscles and Inability to wipe self after bowel movement
slim18 updated the treatment Bidet May 25, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
BiPAP w/humidifier
- - Started: Apr 2, 2013
  - Current Dosage: 9 hr daily
- Purpose: Breathing difficulty, Fatigue, and ALS
slim18 updated the treatment BiPAP w/humidifier May 25, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
ALS (Amyotrophic Lateral Sclerosis)
- First symptom: Jan 24, 2009
- Diagnosis: Jun 24, 2010
slim18 updated the condition ALS (Amyotrophic Lateral Sclerosis) May 25, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

3 stars
slim18 earned a star! May 25, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

2 stars
slim18 lost a star May 21, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
slim18 completed the QOL survey for May 13, 2013 May 12, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
FRS: 16
- moderate Head
- moderate Arms
- moderate Torso
- moderate Legs
slim18 completed the FRS survey for May 13, 2013 May 12, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Symptom Update
- severe Weakness in thigh muscles
- severe Weakness in legs
- moderate Tongue twitching (fasciculations)
- none Sleep problems
- moderate Shortness of breath (dyspnea)
- none Persistent cough or wheeze
- moderate Pain in knees
- moderate Numbness and Tingling with Pins and Needles
- mild Nerve pain (neuralgia)
- moderate Muscle spasms
- moderate Muscle soreness
- mild Mucus in throat
- severe Mobility decreased
- none Lung infection
- severe Loss of fine motor skills
- moderate loss of facial muscles
- severe Loss of balance
- mild Joint crackling (crepitus)
- none feels like mini seizures or strokes
- severe Fatigue
- severe Fasciculations
- severe Falls
- mild Excess saliva
- mild Excess mucus
- mild Excessive yawning
- mild Elevated blood pressure
- severe Edema in lower extremities
- moderate Constipation
- severe Atrophy of left shoulder muscles
- moderate Atrophy of left hand muscles
- moderate Atrophy of left arm muscles
- moderate Atrophy of calf muscles
- mild Acid reflux
- mild Chest pressure
- none Chest pain
- mild Breathing difficulty
- mild Bowel irritability
- mild Bladder problems
- severe Atrophy of right shoulder muscles
- severe Atrophy of right hand muscles
- severe Atrophy of right arm muscles
- See more
slim18 updated his symptoms for May 13, 2013 May 12, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

Neutral
slim18 added an InstantMe for Apr 27, 2013 Apr 26, 2013 6:44PM

Had a shock when my FVC dopped to 36 %
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

FVC: 36%

slim18 completed the FVC survey for Apr 24, 2013 Apr 26, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

Neutral
slim18 added an InstantMe for Apr 21, 2013 Apr 20, 2013 11:54PM

Craaaaaaap
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS

229 lb 4 oz BMI: 32.9
slim18 updated his weight for Apr 21, 2013 Apr 21, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
QOL
- Good Social
- Good Mental
- Bad Physical
slim18 completed the QOL survey for Apr 21, 2013 Apr 21, 2013
slim18

Sex: M

Data Quality: 3 stars

Bulbar: moderate

Arms: moderate

Chest: moderate

Legs: moderate

I am: n

I have:
ALS
Movicol Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
- Perceived effectiveness for Constipation: Major
- Side Effects: Moderate
- Adherence: Always
- Burden: A little
slim18 added a treatment evaluation for Movicol from Apr 21, 2013 Apr 20, 2013
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