HappyPhysicist's Journal

HappyPhysicist: Sex: M; Data Quality: 2 stars; ALS: 2 yrs; Bulbar: moderate; Arms: mild; Chest: mild; Legs: moderate

HappyPhysicist: Male, 46 years; Bloomington, IN

Primary Condition: ALS and 1 more ▼

First symptom: Jun 2010
Diagnosis: Jan 2011

HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS

160 lb BMI: 21.1
HappyPhysicist updated his weight for May 19, 2013 May 19, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
kenpaullone
- - Started: May 9, 2013
  - Current Dosage: 1 mg daily
- Purpose: ALS
HappyPhysicist updated the treatment kenpaullone May 14, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS

Tagged Topic
HappyPhysicist added the tag Vegan to vegan/whole foods diet May 12, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Fisetin
- - Started: May 7, 2013
  - Current Dosage: 100 mg daily
- Purpose: ALS
HappyPhysicist updated the treatment Fisetin May 08, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Melatonin
- - Started: Jan 26, 2011
  - Current Dosage: 300 mg daily
- Purpose: ALS
- View Latest Evaluation
HappyPhysicist updated the treatment Melatonin May 02, 2013
- Added
  - Started: Jan 26, 2011
  - Dosage: 30 mg daily
  - Purpose: ALS (Amyotrophic Lateral Sclerosis)
  - Jan 26, 2011
- Stopped
  - Date: Jun 21, 2011
  - Reason: Other
  - Jun 21, 2011
- Evaluated
  - View Evaluation
  - Jun 21, 2011
- Restarted
  - Dosage: 300 mg daily
  - May 01, 2013
2 comments from other members. Only showing public users' comments. Sign up to see all comments!
- HappyPhysicist
  
  Amazon.com, search 'melatonin bulk'
  
  about 2 weeks ago
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
methylene blue Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
- Side Effects: Severe
- Adherence: Always
- Burden: Not at all
Cost

< $25 monthly

HappyPhysicist added a treatment evaluation for methylene blue May 02, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
FRS: 24
- moderate Head
- mild Arms
- mild Torso
- moderate Legs
HappyPhysicist completed the FRS survey for May 2, 2013 May 02, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
methylene blue
- - Stopped: May 02, 2013
  - Reason: Side effects too severe
  - Started: Apr 27, 2013
  - Last Dosage: 65 mg daily
- Purpose: ALS
- View Latest Evaluation
HappyPhysicist updated the treatment methylene blue May 02, 2013
- Added
  - Started: Apr 27, 2013
  - Dosage: 65 mg daily
  - Purpose: ALS (Amyotrophic Lateral Sclerosis)
  - Apr 27, 2013
- Stopped
  - Date: May 02, 2013
  - Reason: Side effects too severe
  - May 02, 2013
- Evaluated
  - View Evaluation
  - May 02, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Baclofen Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
- Perceived effectiveness for Muscle cramps: None
- Side Effects: None
- Adherence: Usually
- Burden: A little
Advice & Tips

ineffective for controlling cramps

Cost

< $25 monthly

HappyPhysicist added a treatment evaluation for Baclofen from Mar 1, 2013 Apr 07, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Emsam Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): None
- Side Effects: None
- Adherence: Always
- Burden: A little
Cost

$50-99 monthly

HappyPhysicist added a treatment evaluation for Emsam from Apr 4, 2013 Apr 07, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Nuedexta
- - Started: Jun 6, 2012
  - Current Dosage: 20 mg daily
- Purpose: ALS and Emotional lability
- View Latest Evaluation
HappyPhysicist updated the treatment Nuedexta Apr 07, 2013
- Added
  - Started: Jun 06, 2012
  - Dosage: 20 mg daily
  - Purpose: emotions, to stop uncontrollable laughing and crying, ALS (Amyotrophic Lateral Sclerosis), and Emotional lability
  - Jun 06, 2012
- Evaluated
  - View Evaluation
  - Jun 08, 2012
- Evaluated
  - View Evaluation
  - Jun 20, 2012
- Evaluated
  - View Evaluation
  - Nov 12, 2012
- Evaluated
  - View Evaluation
  - Mar 24, 2013
- Stopped
  - Date: Mar 24, 2013
  - Reason: Other
  - Mar 24, 2013
- Restarted
  - Dosage: 20 mg daily
  - Apr 04, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Baclofen
- - Stopped: Mar 01, 2013
  - Reason: Did not seem to work
  - Started: Jan 5, 2013
  - Last Dosage: 10mg as needed
- Purpose: Muscle cramps and ALS
- View Latest Evaluation
HappyPhysicist updated the treatment Baclofen Apr 07, 2013
- Added
  - Started: Jan 05, 2013
  - Dosage: 10mg as needed
  - Purpose: Muscle cramps and ALS (Amyotrophic Lateral Sclerosis)
  - Jan 05, 2013
- Stopped
  - Date: Mar 01, 2013
  - Reason: Did not seem to work
  - Mar 01, 2013
- Evaluated
  - View Evaluation
  - Mar 01, 2013
- Evaluated
  - View Evaluation
  - Mar 05, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Emsam
- - Stopped: Apr 04, 2013
  - Reason: Did not seem to work
  - Started: Mar 28, 2013
  - Last Dosage: 6 mg/24 hr daily
- Purpose: ALS
- View Latest Evaluation
HappyPhysicist updated the treatment Emsam Apr 07, 2013
- Added
  - Started: Mar 28, 2013
  - Dosage: 6 mg/24 hr daily
  - Purpose: ALS (Amyotrophic Lateral Sclerosis)
  - Mar 28, 2013
- Stopped
  - Date: Apr 04, 2013
  - Reason: Did not seem to work
  - Apr 04, 2013
- Evaluated
  - View Evaluation
  - Apr 04, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Nuedexta Treatment Evaluation
- Perceived effectiveness for Emotional lability: Moderate
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): Moderate
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

Stopped only because I stated Emsam (Segeline) which can interact with Dextromathorphan.

Cost

$25-49 monthly

HappyPhysicist added a treatment evaluation for Nuedexta from Mar 24, 2013 Mar 29, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Vinpocetine Treatment Evaluation
- Perceived effectiveness for ALS (Amyotrophic Lateral Sclerosis): ?Can't tell
- Side Effects: Severe
- Adherence: Always
- Burden: Not at all
Advice & Tips

Stopped due to dizziness.

Cost

< $25 monthly

HappyPhysicist added a treatment evaluation for Vinpocetine from Mar 27, 2013 Mar 29, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS
Vinpocetine
- - Stopped: Mar 27, 2013
  - Reason: Side effects too severe
  - Started: Mar 15, 2011
  - Last Dosage: 1 g daily
- Purpose: ALS
- View Latest Evaluation
HappyPhysicist updated the treatment Vinpocetine Mar 29, 2013
- Added
  - Started: Mar 15, 2011
  - Dosage: 5 mg daily
  - Purpose: ALS (Amyotrophic Lateral Sclerosis)
  - Mar 15, 2011
- Stopped
  - Date: Jun 21, 2011
  - Reason: Other
  - Jun 21, 2011
- Evaluated
  - View Evaluation
  - Jun 21, 2011
- Restarted
  - Dosage: 1 g daily
  - Mar 23, 2013
- Stopped
  - Date: Mar 27, 2013
  - Reason: Side effects too severe
  - Mar 27, 2013
- Evaluated
  - View Evaluation
  - Mar 27, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS

FVC: 48%

HappyPhysicist completed the FVC survey for Mar 28, 2013 Mar 28, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS

Pulse Rate

Pulse rate

79 beats/min

Location

Inner elbow (brachial)

HappyPhysicist added a new Pulse Rate value for Mar 28, 2013 Mar 28, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS

Hand Grip Strength Test

Right hand

68.9 pounds (lbs)

Left hand

41 pound (lbs)

HappyPhysicist added a new Hand Grip Strength Test value for Mar 28, 2013 Mar 28, 2013
HappyPhysicist

Sex: M

Data Quality: 2 stars

Bulbar: moderate

Arms: mild

Chest: mild

Legs: moderate

I am: vg

I have:
ALS

Blood Pressure

Systolic

118 mmHg

Diastolic

68 mmHg

Location (optional)

Right arm

Position (optional)

Sitting

HappyPhysicist added a new Blood Pressure value for Mar 28, 2013 Mar 28, 2013
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