Pen'sup
Pen'sup
Sex: F
Data Quality: 2 stars
ALS: 5 yrs
Bi-Pap
Bulbar: none
Arms: moderate
Chest: moderate
Legs: mild
Pen'sup
Female, 64 years
Livermore (Near San Francisco), CA
Primary Condition
ALS and 2 more ▼
First symptom
Sep 2006
Diagnosis
Jan 2008
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Pen'sup's Riluzole is for:

  • ALS

Pen'sup has not reported any side effects for Riluzole.

Pen'sup's Riluzole History (Ongoing)
100 mg Daily Jun 15, 2008 - Last Update
Evaluations
Date Dosage ALS (Amyotrophic Lateral Sclerosis) Efficacy Side Effects Adherence Burden
Sep 14, 2011 100 mg Daily ? NoneNoneNoneNone SometimesSometimesSometimesSometimes VeryVeryVeryVery
Feb 11, 2011 100 mg Daily ? NoneNoneNoneNone SometimesSometimesSometimesSometimes VeryVeryVeryVery
Dec 20, 2010 100 mg Daily ? NoneNoneNoneNone NeverNeverNeverNever VeryVeryVeryVery
Nov 09, 2009 100 mg Daily ? NoneNoneNoneNone SometimesSometimesSometimesSometimes VeryVeryVeryVery
Nov 17, 2008 100 mg Daily ? NoneNoneNoneNone UsuallyUsuallyUsuallyUsually Not at allNot at allNot at allNot at all
Date
Dec 20, 2010
Advice & Tips
I take with other pills-- just too busy to take as presribed
Cost
< $25 monthly
Date
Nov 17, 2008
Advice & Tips
I have a really hard time being able to take the evening dose at a time when I haven't eaten in 2 hr or don't need to take other medicine within the next hour. many times I take both Li and this at same time -- right before bedtime
Cost
< $25 monthly

About Riluzole (Prescription Drug)

Riluzole is the first drug to be approved for amyotrophic lateral sclerosis (ALS). Riluzole, available as Rilutek®, does not cure ALS or improve symptoms, but may extend survival or the time to tracheostomy.

Learn more about Riluzole in our Riluzole Community Report.

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