1. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor lost a star star earnedstar earnedstar not earned

  2. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor was feeling bad

    Because I allow others to influence my attitude.

  3. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor completed the Seizure meter for the week of Aug 17 – 23, 2014

    • 1 conscious seizure
    • Triggers: Fever or overheating, Being very tired or lack of sleep

    I had a very aggressive massage on my neck and shoulders on Wednesday the 20th. I was very sore and had a killer headache that evening. The next day I had a full schedule of Aqua Zumba, Bodyflow and then went to school to buy my books for the semester. It was a very warm day. I took a 2 hour nap. I cared for the horses and cleaned the barn. I still had the neck and head pain. I had eaten breakfast, lunch and dinner and was relaxing watching TV when I began to fade out and had the signs of not knowing where I am, staring, fear at losing consciousness and having a full seizure. I havent had a seizure since 19 April 2013. My husband was there as I did call him when it started, but I am afraid to move or can't move until its over. I took all my medicines and didn't have any alcohol. I had kinda felt a little weird all day.

  4. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor completed the Seizure meter for the week of Aug 10 – 16, 2014

  5. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor was feeling good

  6. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor earned a star! star earnedstar earnedstar earned

  7. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor was feeling good

  8. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor lost a star star earnedstar earnedstar not earned

  9. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor completed the PFRS survey

    • PFRS: 19
    • Fatigue: Little
    • Sleep: Some
    • Stiffness: Some
    • Pain: Little
    • External Stress: Moderate

    I dont really know. I have stopped almost all dairy products. I find that has helped my GI symptoms as well as ensuring that I take Miralax daily to prevent future problems with obstruction.

  10. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor completed the Seizure meter for the week of Jul 27 – Aug 2, 2014

    Began Summer vacation!

  11. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor completed the Seizure meter for the week of Aug 3 – 9, 2014

    On vacation in Yellowstone! Riding for days in RV!

  12. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor completed the Mood Map survey

    • Function
    • Distress
    • External Stress
    • Depression
    • Emotional
    • Compulsion
    • Anxiety
    • Mania
  13. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor added a treatment evaluation for NatureMade B Complex with Vitamin C

    • Perceived effectiveness for Support nutritional health: Can’t tell
    • Perceived effectiveness for General health: Can’t tell
    • Side Effects: None
    • Adherence: Always
    • Burden: Not at all
    • Dosage: Daily
    • Cost: < $25 monthly
  14. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor completed the QOL survey

  15. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor updated her weight

  16. 63963 thumb
    Rebelor
    Data Quality: 2 stars
    • Sex: F
    • Age: 57y
    • Duration: 6 yrs
    PRO survey: PRO 3
    Quality of Life:
    • Mental: Mild
    • Physical: None
    1 seizure
    2 weeks ago
    I am: b
    I have:
    Epilepsy

    Rebelor updated her bio

    I had my first Tonic Clonic seizure in my office in 2008. I had been having episodes where I would have this strange sensation of feeling awesome or a type of euphoria, not really connecting where or who I was and that I was about to connect with a divine message of great importance...like the meaning of life! Later, after I was actually diagnosed with epilepsy, I learned that these were a type of Partial Complex Seizures. Unfortunately, I would never get that important message and the good feeling would go away and I would be left feeling disoriented and tired. Sometimes I actually fell asleep or just fell over. Other events actually turn into a tonic-clonic type of seizure. I haven't had anything since 19 April 2013.  I take medication and manage the stress I can in my life to prevent the seizures from occurring. I was medically retired from the Air Force because of my epilepsy although I did continue to work up until my official retirement. I don't work at all now because of the epilepsy and breast cancer that started 2 years after the epilepsy. Being unable to drive and the side effects of the antiepileptic medications made it difficult for me to function. I have really struggled to find a new identity. Being disabled can really change your perspective on your life. And, it can happen faster than we have the ability to understand and adapt to the new person we become. I have lots of roles I can claim such as wife, mom, step mom, grandmother, daughter, sister, retired, family nurse practitioner, and I can probably add 100 more. I am now also a student. I have chosen to use my GI Bill to try college. This is really a way for me to use my brain and get me thinking outside my much smaller world!

    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
    • 63963 thumb
      Rebelor
      Data Quality: 2 stars
      • Sex: F
      • Age: 57y
      • Duration: 6 yrs
      PRO survey: PRO 3
      Quality of Life:
      • Mental: Mild
      • Physical: None
      1 seizure
      2 weeks ago
      I am: b
      I have:
      Epilepsy

      Rebelor completed the Seizure meter for the week of Jul 13 – 19, 2014

    • 63963 thumb
      Rebelor
      Data Quality: 2 stars
      • Sex: F
      • Age: 57y
      • Duration: 6 yrs
      PRO survey: PRO 3
      Quality of Life:
      • Mental: Mild
      • Physical: None
      1 seizure
      2 weeks ago
      I am: b
      I have:
      Epilepsy

      Rebelor completed the Seizure meter for the week of Jul 20 – 26, 2014

    • 63963 thumb
      Rebelor
      Data Quality: 2 stars
      • Sex: F
      • Age: 57y
      • Duration: 6 yrs
      PRO survey: PRO 3
      Quality of Life:
      • Mental: Mild
      • Physical: None
      1 seizure
      2 weeks ago
      I am: b
      I have:
      Epilepsy

      Rebelor updated her symptoms

      Acid reflux BetterAcid reflux, Back pain, Breast reconstruction, Bruiselike feeling under skin, Bruxism (teeth grinding) See more
      Fatigue WorseFatigue, Fear
    • 63963 thumb
      Rebelor
      Data Quality: 2 stars
      • Sex: F
      • Age: 57y
      • Duration: 6 yrs
      PRO survey: PRO 3
      Quality of Life:
      • Mental: Mild
      • Physical: None
      1 seizure
      2 weeks ago
      I am: b
      I have:
      Epilepsy
    • Show more