I cut I starch serving per meal and ate light snacks between meals. So far it is helping, now if I can just speed it up!
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman updated his symptoms for Dec 20, 2012 Dec 20, 2012Symptom Update
- mild Abdominal pain
- mild Anxious mood
- moderate better mood and fatigue management
- none Causes blood to thin
- mild Depressed mood
- none distolic Heart failure
- See more
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman lost a star Jul 02, 2012
1 star
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman lost a star Jun 29, 2012
2 stars
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- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman updated his weight for Apr 3, 2012 Apr 03, 2012167 lb 4 oz BMI: 26.2
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- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman completed the QOL survey for Apr 3, 2012 Apr 03, 2012QOL
- Good Social
- Good Mental
- Bad Physical
The side effects of the meds are now in full swing! Hip joint pains were so bad for the last month I cannot get around sometimes, getting in or out of bed is extremely painful. I have had MRI's, X-rays, doctor consults all to no avail and now we all decided it must be the Myfortic! When the meds make life as bad as before the transplant is this an improvement? I fear not. Listen myfortic manufacturers, do some research and figure out a way to make a med that has less damaging side effects, for your current med has taken my joy at surviving!! I thank my donor, may God rest his soul, but I curse the manufacturers of these meds!
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- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman earned a star! Apr 03, 2012
2 stars
Have about worn out the one I received a couple of years ago. I wear it to events where a T-shirt is appropriate. I would love to see if I can get a Henley shirt made with the logo on the pocket side front!
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- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman added an InstantMe for Apr 3, 2012 Apr 03, 2012 11:02AMBad
Side effects of meds has almost destroyed the joy of surviving! I refuse to not survive so as to honor the sacrifice of my donor, but med manufacturers ought to be put in prison!!!
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- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman updated his profile picture Apr 03, 2012Updated Photo
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- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman updated the treatment Mycophenolic acid Apr 03, 2012Mycophenolic acid
- Started: May 22, 2009
- Current Dosage: 720 mg daily
- Purpose: Prevent organ rejection
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman updated the treatment Mycophenolic acid Apr 03, 2012Mycophenolic acid
- Started: May 22, 2009
- Current Dosage: 720 mg daily
- Purpose: Prevent organ rejection
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman added a new Creatinine (blood) value for Apr 3, 2012 Apr 03, 2012Creatinine (blood):
- 1.3 mg/dL
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman added a new Glucose (blood) value for Apr 3, 2012 Apr 03, 2012Glucose (blood):
- Glucose level
- 70 mg/dL
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman added a new Blood Pressure value for Apr 3, 2012 Apr 03, 2012Blood Pressure
- Systolic
- 128 mmHg
- Diastolic
- 62 mmHg
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman updated his symptoms for Apr 3, 2012 Apr 03, 2012Symptom Update
- mild Edema (fluid retention)
- severe Pain
- none Stomach problems
- none Urinary frequency
- moderate better mood and fatigue management
- none Excessive thirst (polydipsia)
- See more
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman earned a star! Apr 03, 2012
3 stars
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman lost a star Mar 31, 2012
1 star
I have recently learned that side effects of meds are TERRIBLE! I have lost most of the quality of life I had gained post-TX. Cataracts formed suddenly, weight bearing joint pain has become almost completely debilitating. Come on medical researchers, eliminate all the side effects of suffer the idea you are destroying lifes just as the TX made them better! I am disgusted with the concept of medical research and manufacturing. Make your millions, and screw up lives so you can sell more meds. That is almost criminal!
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- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman lost a star Jan 26, 2012
2 stars
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman completed the QOL survey for Dec 19, 2011 Dec 19, 2011QOL
- Good Social
- Good Mental
- Best Physical
The meds are a total destroyer of the idea of transplant! I will try to hold my words to an "acceptable" level, but I really want to curse the manufacturers for their total disregard for side effects!
-
- Bluesman
- Data Quality: 1 star
-
- Sex: M
- Age: 59y
- Organ: Kidney/Pancreas
-
Quality of Life:
- Mental: Mild
- Physical: Moderate
-
- Kidney : 4y Transplanted
- Pancreas : 4y Transplanted
I have:Pancreas TransplantBluesman added an InstantMe for Dec 19, 2011 Dec 19, 2011 10:30AMGood
Most things are better, and I have slept great!
- Show more