slicky's Journal

slicky: Sex: M; Data Quality: 3 stars; ALS: 25 yrs; Bi-Pap Feeding tube; Bulbar: mild; Arms: mild; Chest: mild; Legs: moderate

slicky: Male, 56 years; citrus heights, CA

Primary Condition: ALS
First symptom: Aug 1986
Diagnosis: Oct 1988

InstantMe

Neutral
slicky added an InstantMe for May 26, 2012 • May 26, 2012 3:12PM
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InstantMe

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slicky added an InstantMe for May 25, 2012 • May 25, 2012 3:35PM
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slicky added an InstantMe for May 24, 2012 • May 24, 2012 3:37PM
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InstantMe

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slicky added an InstantMe for May 23, 2012 • May 23, 2012 3:55PM
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InstantMe

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slicky added an InstantMe for May 22, 2012 • May 22, 2012 3:18PM
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FRS

26
- mild Head
- mild Arms
- mild Torso
- moderate Legs
slicky completed the FRS survey for May 17, 2012 • May 18, 2012
Congratulations, your FRS is higher. What sort of things are helping your ALS symptoms?
FVC

74%

slicky completed the FVC survey for May 18, 2012 • May 18, 2012
What sort of things are making your ALS symptoms worse?
InstantMe

Neutral
slicky added an InstantMe for May 21, 2012 • May 21, 2012 3:29PM
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InstantMe

Neutral
slicky added an InstantMe for May 20, 2012 • May 20, 2012 3:35PM
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Weight

235 lb

BMI

28.6
slicky updated hisyour weight for May 16, 2012 • May 16, 2012
Is there anything in particular that influenced this weight?
Updated outcome

QOL
- Bad Social
- Bad Mental
- Bad Physical
slicky completed the QOL survey for May 16, 2012 • May 16, 2012
Your Quality of Life is improving! What sort of things are making it better?
InstantMe

Neutral
slicky added an InstantMe for May 19, 2012 • May 19, 2012 3:35PM
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InstantMe

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slicky added an InstantMe for May 18, 2012 • May 18, 2012 4:12PM
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Added treatment

Baclofen
- Started: ?
- Purpose: ALS (Amyotrophic Lateral Sclerosis)
slicky added the treatment Baclofen • May 17, 2012
When did you start this treatment?
Added

Symptom Update
- severe Weakness in arms
- moderate Excess saliva
- moderate Cramps in back
- severe Difficulty sleeping through night
- moderate Anxious mood
- mild Abdominal cramps
- severe Neck pain
- moderate Endurance reduced (whole body)
- moderate Emotional lability
- severe Pain in shoulders
- severe Fatigue
- moderate Cramps in legs
- severe Weakness in left arm
- severe Pain
- moderate Cramps in calf muscles
- moderate Stiffness/Spasticity
- severe Neck bones click with movement
- severe Burning sensation in eyes
- moderate Fasciculations
- severe Excessive yawning
- moderate Cramps in neck
- severe Weakness in left hand
- moderate Depressed mood
- moderate Atrophy of calf muscles
- severe Weakness in neck (head drop)
- severe Insomnia
- mild Constipation
- moderate Back pain
- moderate Weakness in right hand
- severe Joints ache (whole body)
- moderate Jaw clonus
- moderate Wheezing
- severe Headaches
- severe Cold feet
- mild Breathing difficulty
- See more
slicky updated hisyour symptoms for May 17, 2012 • May 17, 2012
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InstantMe

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slicky added an InstantMe for May 17, 2012 • May 17, 2012 3:25PM
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slicky added an InstantMe for May 16, 2012 • May 16, 2012 3:50PM
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3 stars
slicky earned a star! • May 17, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
InstantMe

Neutral
slicky added an InstantMe for May 15, 2012 • May 15, 2012 3:45PM
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InstantMe

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slicky added an InstantMe for May 14, 2012 • May 14, 2012 3:42PM
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