I have had ALS for 26 years, I take lots of vitamins, do tai chi and pray. I wear a neck brace sometimes because i get tension headaches from my neck muscles being weak. I am retired and 59 years old. Have 8 grandkids 13, 10, twins 10 one 5 years old, and a 3 year old, one 2 and a 1 year old, have been using bipap 4 hours each day, and had my feeding tube put in on 9th of March 2010.
I am a person who refuses to give up no matter what, i will keep going not for myself but for my little grandchildren, yes it is hard to keep going, i think if you think you are going to die you will so i keep going.