1. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 increased her Carbidopa-Levodopa dosage

    increase better Dosage12.2 x 25 mg-100 mg daily (was 12 x 25 mg-100 mg daily until )
  2. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

  3. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    I suffered a traumatic brain injury on October 5, 1992 from a horseback riding accident. I have a very long story.

    This was my guide line for being the quest speaker in classes. I used to talk to Occupational Therapy, Physical Therapy, Message Therapy, Neuro Science, etc. I have not done it in a while. If you have any questions, just let me know.

    October 5, 1992 - horseback riding alone, field 3 hours, collie led my husband (at the time) to me, McGee Memorial, emergency room Doctors sent me to the neuroscience center at Poudre Valley - temp 92, but age 18-25, sex

    less than 20% chance of living, never walk or talk
    sub-dural hematoma

    covered entire left hemisphere

    small areas of permanent damage

    top of my basal ganglia

    my left temporal lobe

    -controls communication

    was seen on the MRI - midline over 1 inch

    talk - 4 months

    walk - 5 months

    after 3 months Dr's in Santa Fe - nursing home

    in coma - for 4 months after - no memory
    - very glad because I was bald and so unfunctional
    hospitalized - 6 months
    tracheotomy - 8 weeks
    stomach tube - 8 months
    after 4 months of lying in bed, casts feet, left hand
    -24hrs-6 weeks and then bed-6 months after
    bathroom 4 months - often - casts bed, whistle

    it was 1 month before wheelchair, 5 months walker
    didn't eat 4 months, started ate slow, liquid thickener
    still eat a little slow, wish eat faster, talk slower

    My recovery was always much better than the doctors ever expected.

    First, I wasn't expected to even live long enough for the surgery or to survive the craniotomy. Second, when the doctors realized that I would live, they thought that I would never walk or talk again. They also didn't know when I would ever come out of the deep coma. On a daily basis my speech and movement bother me, but I have acquired a special appreciation for all the basics in life.

    Improvements
    shower - sat - 9 months

    dressed - shoes - 1 year

    brushing my teeth - 10 months

    could not lift my arms above

    or reach my back

    get my watch on

    earrings, necklace

    clip my nails, wasn't well coordinated

    drying my hair - 18 months

    curling my hair - 22 months

    24 hour care - more than 1 1/2 years

    movies

    more than 2 1/2 years before I could laugh

    tie my shoes standing

    stand on one-foot

    writing my first name, 36 sec - 5 sec, average 8

    journal - 4 1/2 years
    - everything
    - ate, where went, what did, how felt
    - writing, memory
    - wave, feet
    almost 2 years after the accident I returned to CSU
    Animal Science major, graduated 3 years, had transfer credits form before the accident
    intern CDHIA computer records, collecting milk samples
    CU Boulder diabetes research mice, grant ended after 2 1/2 years
    State Rep./Senate Ron Tupa, survey 2000, bus
    Carmel Community Living - day program coordinator
    CU Denver, diabetes research mice, bus (125X safer)

    Laboratory Medical Center - histology -Las Vegas
    Christmas 2006-Unipath - Histology Laboratory Assistant - Denver - Access a Ride for 41/2 years - now drive 12 miles and ride bus, train and bus

    stews, sweet bread, and cookies - my continuous therapy
    motor skills, following steps, coordinating, after done we get to enjoy the therapy

    score and record sleep, energy, walking and speech on scale a 0-10
    time and record showers, getting dressed and changes in medication
    Spring 1995 Dr. Christopher O'Brien - left for research - Dr. Kumar - Movement Disorder Center for Colorado Neurology in Swedish Medical Center and Craig Rehabilitation Hospital

    in January 2001 and in September 2008, Dr. Kumar did MRI and EEG, saw all the permanent damage

    top of my basal ganglia damaged, substantia nigra, produces dopamine
    dopamine - chemical that facilitates nerve connections
    allows you to make smooth controlled movements
    Simenet helps the brain produce dopamine, been on sinemet since shortly after the accident

    Fall 1997- to January 2007synthetic dopamine (Permax )-decreased sinemet to less 1/4 of what I used to take-natural-bed Permax was discontinued so I tried Mirapex and then Requip, November 2008
    Most people on Requip take 4 to 6 mg/day, I was up to 24 mg (the maximum dose) in 6 weeks
    hard time adjusting my dose of Sinemet, little to much wild, little to little slow and stiff
    I take 3 times the average daily dose because my brain makes no dopamine at all.
    October 2012, gradually decreased Requip and gradually increased Neupro patches
    January 2013 off Requip, by February 2013 on 12mg Neupro, 8mg is for Advanced Parkinson disease, I was on 12mg, causes patients to lean to the right so I cut back to 6mg
    asked Dr. O'Brien's nurse if other patients had a hard time adjusting the dose - no Parkinson disease

    brains chemical balances always changes
    more than 3 years after the accident - 24 hour flu - went to the Health Center for an IV, couldn't keep medication down - whole body turned stiff as a board, slow almost 2 months - immune system - automatic toothbrush - now flu shot
    dystonia - abnormal muscle tone-wrong signal, effects left side - spasticity rigidity of muscles -right side
    right toes - since casts - standing they curl, sitting , lying down still painful, thalamus controls pain signals
    left toes - straight, cross, early in morning, when sick thought they would break off
    left arm stiffens when my left toes curl, early morning and late at night, my left side slow
    January 2002 - surgery on my second right toe
    January 2008 started on Comtan to keep Sinemet in my system longer, stopped, March 2011.
    2 alarm clocks -6 different exact times a day - 32 pills/day from 4 prescriptions -
    if I am up to 15 minutes late at any time, my brain and body will slow down drastically

    Oculormotor nerve damaged from pressure of hematoma , which controls eye movement
    double vision after the accident, saw 2 of everything, strongest prisms on my glasses and could still only read with one eye - eye surgery 1 1/2 weeks before returned to school, surgeon said red 3 weeks, red for 3 months
    double vision started getting worse about 11/2 years after surgery
    - writing behind my hand and reading sometimes - varies
    - eyes get stuck shut occasionally due to oculormotor nerve damage
    - dilate my eyes, my vision gets much better
    - don't drink enough, tunnel vision and spots disappear
    2 1/2 yeas after surgery, weak prisms, finger
    tried glue on prism for reading, but writing and stairs after MRI in 2003, I woke up, no prisms needed but stronger prescription in 2011 weak prisms needed and stronger prescription

    Still Problems
    speech varies - social

    memory

    slow in general

    remembering name

    right hand typing - spasticity

    arms and hands don't naturally relax - dystonia
    left hand shaky - dystonia
    walk slow, feet drag
    loud walker

    food stuck - lower my chin to drink

    Miscellaneous
    3-4 years destructive thoughts

    swimming - 1 year after sank - next year whole lap

    skiing - helmet - breathing

    biking - almost 4 years

    cold shiver - jump - seizure?

    little noises - jump

    smell, taste, after 5 years cravings

    cough signal was disconnected

    no headaches
    no dreams for over 20 years
    note takers
    tutors
    extra time on tests - computer - orally
    Bovine AI, Disabled Student Office, smell
    physical therapist, workout - row, weights, stretches
    row-knees, healthier, immune, vitamin C, flu shot

    Braiden Hall - realize now
    now, I am very glad I went to CSU, very glad I'm done

    Division of Vocational Rehabilitation
    recommended by occupational therapist at CSU

    job placement and in a number of ways to help me achieve my goals,
    referred me to the Brain Injury Recovery Program, for driving lessons with a special adaptation, left gas pedal, if someone else drives it pops out, I get a kick out of it, "so simple it's ingenious," very glad I didn't remember how good the independence felt and I am very glad there was no rush because I used to dream of crashing
    They are always available to help me to find a new job, when I need it - Community Based Assessment (CBA) - subsidize

    A study showed that for every $1 state tax dollar put into Division of Vocational Rehabilitation, $10 more
    state tax dollars returns to the state by us getting out and earning money and paying taxes.

    Involved in the Brain Injury Association
    great place where I have made many good friends
    in Colorado they referred me to CU Boulder for speech therapy

    Recommendations:
    if someone just lies in bed - avoid casts - move them to music
    Vocational Rehabilitation for people with disabilities
    medication checklist or alarm clock
    journal
    energy sheet
    health insurance
    encourage family to be supportive
    focus on what you can do, not what you can't do

    enjoy continuous therapy - cooking, working out, hiking, skiing, giving speeches, etc.
    wear a helmet, several friends broke their helmets - heads fine
    kids tell me "wear a helmet, you are totally cool and respected"

    my endless list of reasons to wear a helmet:
    my toes
    my right side
    my vision
    my speech
    3 craters in my head
    hospitalized for 6 months
    4 prescriptions, 32 pills and 1 patch each day at 6 exact times

    if you enjoy eating, breathing, walking and talking
    etc.

    Brain Injury Association of Colorado facts:
    - every 15 seconds in America a person sustains a traumatic brain injury (TBI)
    - every 5 minutes one of these people will die AND another will be become permanently disabled

    - over 2 million TBI in the US per year, 500,000 severe enough to require hospitalization
    - as many people die each year from a TBI as in the entire Vietnam War
    - motor vehicles accidents cause-50%, falls-21%, violence-12%, sports-10%
    - TBI is the number one killer of American youth
    - wearing a bike helmet reduces the chance of a TBI by 88%
    -after surviving one TBI we have a 50% chance of having a second TBI

    Christina Snyder

    2 comments from other members. Only showing public users' comments. Sign up to see all comments!
      Portrait default thumb
      Christina22222 6 days ago

      Hi Suzanne,
      How did you have your brain injury? Everyday I stay positive by focusing on what I can do and not on what I can not do. That is very helpful to keep me positive. What did you think of my story?
      Christina

  4. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 updated the condition Parkinson's Disease

    • First symptom:
    • Diagnosis:
  5. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 updated her symptoms

    increase worse WorseDifficulty sleeping through night
  6. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

    Thanks to Yoga class.

  7. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 updated her labs and tests

    • Total Protein (blood)7.2 g/dL on
    • Sodium, blood142 mEq/L on
  8. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

  9. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

  10. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 completed the PDRS survey

    • PDRS: 11
    • On treatment
    • mild Mouth/throat
    • none Arms
    • none Chest
    • mild Legs
  11. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 updated her weight

  12. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 completed the QOL survey

  13. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

  14. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 shared details about Kirkland Vitamin C

    Dosage1000 mg daily (starting )
  15. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 shared details about Stool Softener

    decrease worse Dosage200 mg daily (was 300 mg daily until )
  16. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 updated the condition Osteoporosis

    • First symptom: ?
    • Diagnosis:
  17. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 became a 3 star data donor! star earnedstar earnedstar earned

  18. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

  19. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

  20. Portrait default thumb
    Christina22222
    Data Quality: 3 stars
    • Sex: F
    • Age: 43
    Condition: TBI 2 additional condition(s)
    Quality of Life:
    • Mental: None
    • Physical: None
    I am: vg
    I have:
    TBI

    Christina22222 was feeling very good

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