Mikhali's Journal

Mikhali: Sex: M; Data Quality: 2 stars; MS: 4 yrs; Type: Relapsing-Remitting; Sensation: Moderate; Overall: Mild; Cognition: moderate; Vision: moderate; Speech: mild; Swallowing: mild; Upper limb: mild; Walking: moderate

Mikhali: Male, 44 years; Adelaide, SA

Primary Condition: MS and 1 more ▼

Type: Relapsing-Remitting

First symptom: Mar 2009
Diagnosis: Apr 2009

Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS

2 stars
Mikhali lost a star Dec 16, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS

180 lb 12 oz BMI: 28.3
Mikhali updated his weight for Nov 12, 2012 Nov 11, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Mood Map
- Function
- Distress
- External Stress
- Depression
- Emotional
- Compulsion
- Anxiety
- Mania
Mikhali completed the Mood Map survey for Nov 12, 2012 Nov 11, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
MS (Multiple Sclerosis)
- First symptom: Mar 2, 2009
- Diagnosis: Apr 14, 2009
Mikhali updated the condition MS (Multiple Sclerosis) Nov 11, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Symptom Update
- mild Aching burning throbbing body pain
- mild Anxious mood
- mild Back pain
- moderate Bladder problems
- moderate Bowel problems
- mild Brain fog
- mild Burning sensation
- moderate Constipation
- mild Depressed mood
- mild Emotional lability
- mild Excessive daytime sleepiness (somnolence)
- mild Fatigue
- mild Headaches
- none Insomnia
- mild Mood swings
- mild Optic nerve inflammation (Optic neuritis)
- mild Pain
- moderate Sexual dysfunction
- moderate Stiffness/Spasticity
- mild Weight gain
- See more
Mikhali updated his symptoms for Nov 12, 2012 Nov 11, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS

3 stars
Mikhali earned a star! Nov 11, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Symptom Update
- mild Aching burning throbbing body pain
- mild Anxious mood
- mild Back pain
- moderate Bladder problems
- moderate Bowel problems
- mild Brain fog
- mild Burning sensation
- moderate Constipation
- moderate Depressed mood
- moderate Emotional lability
- mild Excessive daytime sleepiness (somnolence)
- moderate Fatigue
- mild Headaches
- none Insomnia
- mild Mood swings
- mild Optic nerve inflammation (Optic neuritis)
- mild Pain
- moderate Sexual dysfunction
- moderate Stiffness/Spasticity
- moderate Weight gain
- See more
Mikhali updated his symptoms for Nov 4, 2012 Nov 04, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Axit
- - Started: Aug 1, 2012
  - Current Dosage: 45 mg daily
- Purpose: MS
Mikhali updated the treatment Axit Nov 04, 2012
- Added
  - Started: Aug 01, 2012
  - Dosage: 15 mg daily
  - Purpose: Reactive Depression and MS (Multiple Sclerosis)
  - Aug 01, 2012
- Changed Dosage
  - Dosage: 45 mg daily
  - Sep 01, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Reactive Depression
- First symptom: ?
- Diagnosis: ?
Mikhali updated the condition Reactive Depression Nov 04, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS

2 stars
Mikhali lost a star Oct 17, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Gilenya
- - Stopped: Aug 14, 2012
  - Reason: Did not seem to work, Doctor's advice, and Other
  - Started: Aug 2, 2012
  - Last Dosage: 500 intl units daily
- Purpose: MS
- View Latest Evaluation
Mikhali updated the treatment Gilenya Sep 17, 2012

3 days before taking this treatment, I had a mild relapse which was not that bad but still noticable. The neuro put me on Gilenya as arranged and requested I take steroids in tablet form to deal with the relapse.

However, the relapse got worse even while taking the steroids for a week. A week later my condition had deteriotated all while taking the Gilenya. I admitted myself into hospital with a copy of an email from my neuro to have steroids via infusion.

The steroids via infusion usually work great but because I was still taking the Gilenya the steroids were not helping like it should. I would get better in the evening then after I took Gilenya in the morning, things would worsen again. So after getting out of hospital I stopped taking the Gilenya after consulting with the neuro.

Sigh, another treatment that does not work. Only the Tysabri at this stage! Will have to wait another 3 mths before going on that again.
- Added
  - Started: Aug 02, 2012
  - Dosage: 500 intl units daily
  - Purpose: MS (Multiple Sclerosis)
  - Aug 02, 2012
- Stopped
  - Date: Aug 14, 2012
  - Reason: Did not seem to work, Doctor's advice, and Other
  - Aug 14, 2012
- Evaluated
  - View Evaluation
  - Aug 14, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
MSRS: 39
- Mild Cognition
- Mild Vision
- None Speech
- None Swallowing
- None Upper Limb
- Mild Walking
- Mild Sensation
Mikhali completed the MSRS survey for Sep 17, 2012 Sep 17, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Gilenya Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): None
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

Only seemed to make my relapse worse. Probably bad timing.

Cost

< $25 monthly

Mikhali added a treatment evaluation for Gilenya from Aug 14, 2012 Sep 17, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Gilenya Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): None
- Side Effects: None
- Adherence: Always
- Burden: Not at all
Advice & Tips

Only seemed to make my relapse worse. Probably bad timing.

Cost

< $25 monthly

Mikhali added a treatment evaluation for Gilenya from Aug 14, 2012 Sep 17, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Symptom Update
- mild Aching burning throbbing body pain
- mild Anxious mood
- mild Back pain
- moderate Bladder problems
- moderate Bowel problems
- mild Brain fog
- mild Burning sensation
- moderate Constipation
- moderate Depressed mood
- mild Emotional lability
- moderate Excessive daytime sleepiness (somnolence)
- mild Fatigue
- mild Headaches
- none Insomnia
- mild Mood swings
- moderate Optic nerve inflammation (Optic neuritis)
- mild Pain
- severe Sexual dysfunction
- moderate Stiffness/Spasticity
- mild Weight gain
- See more
Mikhali updated his symptoms for Sep 17, 2012 Sep 17, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS

3 stars
Mikhali earned a star! Sep 17, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS

2 stars
Mikhali lost a star Aug 27, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
Tramadol Treatment Evaluation
- Perceived effectiveness for Aching burning throbbing body pain: Moderate
- Perceived effectiveness for Back pain: Major
- Perceived effectiveness for Fatigue: Major
- Side Effects: Mild
- Adherence: Always
- Burden: Not at all
Cost

< $25 monthly

Mikhali added a treatment evaluation for Tramadol from Jul 20, 2012 Jul 19, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS
QOL
- Good Social
- Good Mental
- Good Physical
Mikhali completed the QOL survey for Jul 20, 2012 Jul 19, 2012
Mikhali

Sex: M

Data Quality: 2 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: moderate

I am: g

I have:
MS

156 lb 5 oz BMI: 24.5
Mikhali updated his weight for Jul 19, 2012 Jul 19, 2012
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