faeroe347
faeroe347
Sex: M
Data Quality: 3 stars
ALS: 3 yrs
Bi-Pap Wheelchair
Bulbar: none
Arms: severe
Chest: mild
Legs: severe
faeroe347
Male, 67 years
Kyoto-shi, Kyoto-fu
Primary Condition
ALS
First symptom
May 2009
Diagnosis
Sep 2010
See more
  1. faeroe347
    InstantMe
    Good
    added an InstantMe for May 27, 2012 • May 26, 2012 11:32AM

    Admission day for PEG & tracheotomy surgery is May 29, Tuesday. >>> Finally!

  2. faeroe347
    FVC
    41%
    completed the FVC survey for May 7, 2012 • May 08, 2012
  3. faeroe347
    Added treatment
    Permobil C400
    • Started: Mar 31, 2012
    • Dosage: daily
    added the treatment Permobil C400 • May 08, 2012
  4. faeroe347
    Added treatment
    Permobil C400
    • Started: Mar 31, 2012
    • Dosage: daily
    added the treatment Permobil C400 • May 08, 2012
  5. faeroe347
    FRS
    17
    • none Head
    • severe Arms
    • mild Torso
    • severe Legs
    completed the FRS survey for May 2, 2012 • May 02, 2012
  6. faeroe347 added the tag eye gaze technology to A video I made for the MND Association to give hope to those facing life with eye control only • May 03, 2012
  7. faeroe347
    star earnedstar earnedstar earned 3 stars
    earned a star! • May 02, 2012
  8. faeroe347
    star earnedstar earnedstar notearned 2 stars
    lost a star • Apr 29, 2012
  9. faeroe347 added the tag ventilation to T0 BE OR NOT TO BE... • Apr 18, 2012
  10. faeroe347 added the tag Meditation to A Path to Survival II: The Roadmap • Apr 14, 2012
  11. faeroe347 added the tag Religion to Where do you get your strength from? • Apr 14, 2012
  12. faeroe347 added the tag Inner strength to Where do you get your strength from? • Apr 12, 2012
  13. faeroe347 added the tag strength to Where do you get your strength from? • Apr 12, 2012
  14. faeroe347
    InstantMe
    Good
    added an InstantMe for Apr 6, 2012 • Apr 05, 2012 11:10AM

    Life or death...? Hmmm... I'm thinking.

  15. faeroe347 added the tag conjecture to ALS "Alien Lifeforms Syndrome/Species " The real and proper acronym • Apr 12, 2012
  16. faeroe347 added the tag trache without vent to Those who have trache: How many times do you suction at night? • Apr 11, 2012
  17. faeroe347 added the tag Philosohy,happiness,priorities,distractions to A Path to Survival II: The Roadmap • Apr 11, 2012
  18. faeroe347 added the tag Will power to A Path to Survival II: The Roadmap • Apr 11, 2012
  19. faeroe347 added the tag affirmations to A Path to Survival II: The Roadmap • Apr 11, 2012
  20. faeroe347 added the tag low glycemic to Incredibly Thirsty • Apr 11, 2012
  21. Show more