amma's Journal

amma: Sex: F; Data Quality: 2 stars; ALS: 7 yrs; Ventilator Wheelchair Feeding tube; Bulbar: moderate; Arms: severe; Chest: severe; Legs: moderate

amma: Female, 65 years; Portland, OR

Primary Condition: ALS
First symptom: Jan 2005
Diagnosis: Jun 2006

2 stars
amma lost a star • Apr 08, 2012
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InstantMe

Neutral
amma added an InstantMe for Feb 23, 2012 • Feb 23, 2012 8:30PM

grey day

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FRS

4
- moderate Head
- severe Arms
- severe Torso
- moderate Legs
amma completed the FRS survey for Feb 23, 2012 • Feb 23, 2012
What else would you like to share about the impact of ALS on your life?
Weight

144 lb

BMI

25.5
amma updated heryour weight for Feb 4, 2012 • Feb 04, 2012
Is there anything in particular that influenced this weight increase?
FRS

4
- severe Head
- severe Arms
- severe Torso
- moderate Legs
amma completed the FRS survey for Feb 4, 2012 • Feb 04, 2012
What sort of things are making your ALS symptoms worse?
Added

Symptom Update
- severe Weakness in shoulder
- severe Shortness of breath (dyspnea)
- mild Emotional lability
- mild Fatigue
- severe Choking on food
- severe Atrophy of forearm muscles
- none Pain
- severe Difficulty projecting voice
- severe Coughing while drinking
- mild Stiffness/Spasticity
- mild Excessive yawning
- severe Ineffective cough
- mild Fasciculations
- severe Choking on liquids
- severe Weakness in neck (head drop)
- severe Weakness in left arm
- mild Depressed mood
- mild Vitamin D deficiency
- severe Difficulty turning over or moving in bed
- mild Constipation
- severe Atrophy of hand muscles
- severe Weakness in hands
- none Insomnia
- severe Atrophy of upper body muscles
- severe Decreased diaphragm strength
- severe Breathing difficulty
- mild Excess saliva
- severe Atrophy of right arm muscles
- severe Atrophy of shoulder muscles
- mild Anxious mood
- See more
amma updated heryour symptoms for Feb 4, 2012 • Feb 04, 2012
What else would you like to share about these symptoms?
Hospitalization

Gallbladder removal (Cholecystectomy)
- Admitted: Dec 4, 2011
- Discharged: Dec 8, 2011
amma added a hospitalization for Gallbladder removal (Cholecystectomy) • Feb 04, 2012
What else would you like to share about this hospitalization?
InstantMe

Good
amma added an InstantMe for Feb 4, 2012 • Feb 04, 2012 6:34PM
What's making you feel good?
3 stars
amma earned a star! • Feb 04, 2012
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
amma lost a star • Jan 17, 2012
Nice work! One more star and you get a PLM t-shirt!
New evaluation

BiPAP w/humidifier Treatment Evaluation
- Efficacy for Breathing difficulty: Major
- Efficacy for Fatigue: Major
- Efficacy for General health: Major
- Side Effects: None
- Adherence: Always
- Burden: A little
amma added a treatment evaluation for BiPAP w/humidifier from Dec 5, 2011 • Jan 09, 2012
Stopped treatment

BiPAP w/humidifier
- Stopped: Dec 5, 2011
- Reason: Other
amma stopped taking the treatment BiPAP w/humidifier • Jan 09, 2012
What else would you like to share about stopping this treatment?
Stopped treatment

Tracheostomy
- Stopped: Dec 5, 2011
amma stopped taking the treatment Tracheostomy • Jan 09, 2012
What else would you like to share about stopping this treatment?
Added treatment

Tracheostomy
- Started: Dec 5, 2011
- Dosage: one time
- Purpose: Breathing difficulty
amma added the treatment Tracheostomy • Jan 09, 2012
What else would you like to share about this treatment?
New evaluation

PEG-Percutaneous Endoscopic Gastrostomy Treatment Evaluation
- Efficacy for General health: Major
- Side Effects: None
- Adherence: Usually
- Burden: Not at all
amma added a treatment evaluation for PEG-Percutaneous Endoscopic Gastrostomy from Oct 19, 2011 • Oct 27, 2011
New evaluation

Citalopram Treatment Evaluation
- Efficacy for Depressed mood: Moderate
- Side Effects: None
- Adherence: Always
- Burden: Not at all
amma added a treatment evaluation for Citalopram from Oct 19, 2011 • Oct 27, 2011
3 stars
amma earned a star! • Oct 27, 2011
Congrats! Did you know 3 star members can get a free PLM t-shirt?
2 stars
amma lost a star • Oct 22, 2011
Nice work! One more star and you get a PLM t-shirt!
InstantMe

Good
amma added an InstantMe for Apr 5, 2011 • Apr 05, 2011 9:08PM

went to ALS support

What's making you feel good?
InstantMe

Good
amma added an InstantMe for Mar 14, 2011 • Mar 14, 2011 6:06PM

Triedd a new caregiver today to be a back-up for my regular one. She looks good

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About amma