sunnie's Journal

sunnie: Sex: M; Data Quality: 1 star; MS: 8 yrs; Type: Relapsing-Remitting; Sensation: Severe; Overall: Severe; Cognition: severe; Vision: moderate; Speech: moderate; Swallowing: moderate; Upper limb: moderate; Walking: moderate

sunnie: Male, 54 years; Tampa, FL

Primary Condition: MS

Type: Relapsing-Remitting

First symptom: Jun 2004
Diagnosis: Jul 2004

sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Abilify
- - Started: ?
  - Dosage: ?
- Purpose:
sunnie updated the treatment Abilify Apr 30, 2013
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MS (Multiple Sclerosis)
- First symptom: Jun 1, 2004
- Diagnosis: Jul 1, 2004
sunnie updated the condition MS (Multiple Sclerosis) Apr 30, 2013
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Modafinil
- - Started: Mar 15, 2011
  - Current Dosage: 200 mg daily
- Purpose: MS
sunnie updated the treatment Modafinil Apr 30, 2013
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Very bad
sunnie added an InstantMe for Dec 28, 2012 Dec 28, 2012 4:47PM

Im having bad spasams in my legs, I am so tired and lack energy. My joints hurt bad and having a hard time following directions and very foggy.
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
QOL
- Bad Social
- Bad Mental
- Bad Physical
sunnie completed the QOL survey for Dec 28, 2012 Dec 28, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

221 lb BMI: 30.0
sunnie updated his weight for Dec 28, 2012 Dec 28, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MSRS: 82
- Total Disability Cognition
- Moderate Vision
- Moderate Speech
- Moderate Swallowing
- Moderate Upper Limb
- Moderate Walking
- Total Disability Sensation
sunnie completed the MSRS survey for Dec 28, 2012 Dec 28, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Relapse
sunnie added a severe relapse on Dec 28, 2012 until Dec 28, 2012 Dec 28, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Bad
sunnie added an InstantMe for May 25, 2012 May 25, 2012 9:39AM

Having a rough day, it's been hot and the heat got to me. Im tired, achey and foggy
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Relapse
sunnie added a mild relapse on May 21, 2012 until May 25, 2012 May 25, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

218 lb BMI: 29.6
sunnie updated his weight for May 25, 2012 May 25, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MSRS: 67
- Total Disability Cognition
- Mild Vision
- Moderate Speech
- Mild Swallowing
- Mild Upper Limb
- Moderate Walking
- Moderate Sensation
sunnie completed the MSRS survey for May 24, 2012 May 25, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MSRS: 60
- Moderate Cognition
- Mild Vision
- Mild Speech
- Mild Swallowing
- Mild Upper Limb
- Mild Walking
- Total Disability Sensation
sunnie completed the MSRS survey for May 25, 2012 May 25, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Copaxone Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): Major
- Side Effects: None
- Adherence: Always
- Burden: A little
Advice & Tips

I use an ice pack to numb the area before taking my shot. After, I take the ice pack and massage the area for a minute it help with the after sting and moving the medication around so it don't raise up under my skin and cause an irritation. I know shots get old after a while but this will help with some of the pain of doing it.

Cost

< $25 monthly

sunnie added a treatment evaluation for Copaxone May 25, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

1 star
sunnie lost a star Mar 02, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

225 lb BMI: 30.5
sunnie updated his weight for Jan 31, 2012 Jan 31, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
Symptom Update
- moderate Anxious mood
- none Lightheadedness from upper back into head
- none severe gall bladder attack
- moderate Bladder problems
- mild Bowel problems
- severe Sexual dysfunction
- severe Mood swings
- moderate Excessive daytime sleepiness (somnolence)
- moderate Insomnia
- moderate Depressed mood
- none Dizziness
- severe Brain fog
- severe Stiffness/Spasticity
- moderate Walking problems
- severe Heavy sensation in legs
- severe Pain
- moderate Brain lesions
- moderate Fatigue
- severe Emotional lability
- none Numbness in face
- See more
sunnie updated his symptoms for Jan 31, 2012 Jan 31, 2012
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

Bad
sunnie added an InstantMe for Dec 3, 2011 Dec 03, 2011 1:31PM

My wife just lost her job and we are down to our last few dollars until her unemployment gets approved. An I very depressed and down.
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS
MSRS: 78
- Total Disability Cognition
- Moderate Vision
- Mild Speech
- Moderate Swallowing
- Moderate Upper Limb
- Moderate Walking
- Total Disability Sensation
sunnie completed the MSRS survey for Nov 3, 2011 Dec 03, 2011
sunnie

Sex: M

Data Quality: 1 star

Sensation: Severe

Overall: Severe

Cognition: severe

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: vb

I have:
MS

215 lb BMI: 29.2
sunnie updated his weight for Dec 3, 2011 Dec 03, 2011
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