- slowrambler
- Sex: M
- Data Quality: 2 stars
- MS: 36 yrs
- Type: Secondary Progressive
- Sensation: Severe
- Overall: Mild
- Cognition: none
- Vision: none
- Speech: none
- Swallowing: none
- Upper limb: none
- Walking: severe
- slowrambler
- Male, 58 years
- Apalachin, NY
- Primary Condition
- MS
- Type
- Secondary Progressive
- First symptom
- 07/75
- Diagnosis
- 09/75
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slowrambler's Low Dose Naltrexone (LDN) is for:
- MS
slowrambler has not reported any side effects for Low Dose Naltrexone (LDN).
| Low Dose Naltrexone (LDN) (naltrexone) | |
| 4.5 mg Daily Sep 01, 2008 - Last Update |
| Date | Dosage | MS (Multiple Sclerosis) Efficacy | Side Effects | Adherence | Burden |
|---|---|---|---|---|---|
| Feb 09, 2009 | 4.5 mg Daily |
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| Sep 07, 2008 | 4.5 mg Daily |
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- Date
- Sep 07, 2008
- Advice & Tips
- This medication is FDA approved for MS in "compounded" form only. If an MS patient can obtain a prescription for this medication (many neurologists won't consider writing a script for this), they'll need to have access to a "compounding" pharmacy. As with all medications, success rates appear to vary. Many people who I know that are using LDN have realized dramatic, if not astonishing symptomatic relief in addition to less disease activity. Some that I know tried it for a period of time without any noticible relief or change & thus stopped using it. Success rates have seemed to depend on dosage level, at least from my observations. Some using LDN notice change almost immediately at the lower dosage levels. Others, as noted above, realize no change at any dosage level. Personally, the symptom relief that I've noticed most is an increase in heat tolerance. As far as my overall success rate, I'd say this medication has done very well in slowing the progression. I've gone over 15 months without having an exacerbation or needing IV solu-medrol. 11 of those months have been since I began using LDN, & I'm not using highest dosage. Maintaining my mobility level & being essentially symptom free for this period of time is very unusual (& quite pleasant!) for me; especially over the last 3 yrs. Note: neurologists/MS specialists might recommend a dormant period of time between stopping a current medication (Beta-Seron, Avonex, etc.) & the beginning of LDN use.
- Cost: $50-99 monthly
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