27101-full
gubar
Sex: M
Data Quality: 1 star
MS: 5 yrs
Type: Relapsing-Remitting
Sensation: None
Overall: None
Cognition: mild
Vision: mild
Speech: none
Swallowing: none
Upper limb: mild
Walking: none
gubar
Male, 29 years
United Kingdom
Primary Condition
MS
Type
Relapsing-Remitting
First symptom
Diagnosis
See more
  1. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Basic Information

    updated his basic information Oct 27, 2012
  2. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Vitamin D

      • Started: Aug 1, 2012
      • Current Dosage: 1000 intl units daily
    • Purpose:
    updated the treatment Vitamin D Oct 27, 2012
  3. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Black Walnut Hull

      • Started: Sep 15, 2012
      • Current Dosage: 30 g daily
    • Purpose:
    updated the treatment Black Walnut Hull Oct 27, 2012
  4. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Hydrangea root extract

      • Started: ?
      • Dosage: ?
    • Purpose:
    updated the treatment Hydrangea root extract Oct 27, 2012
  5. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Bee Propolis

      • Started: ?
      • Dosage: ?
    • Purpose:
    updated the treatment Bee Propolis Oct 27, 2012
  6. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Nicotinamide

      • Started: ?
      • Dosage: ?
    • Purpose:
    updated the treatment Nicotinamide Oct 27, 2012
  7. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    MS (Multiple Sclerosis)

    • First symptom:
    • Diagnosis:
    updated the condition MS (Multiple Sclerosis) Oct 27, 2012
  8. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Updated Bio

    I am a reckless adventurer and being slowed down by MS is not an option. In other words, I still haven't given up although there were some really hard times emotionally. I am fully self-supporting and have no one to rely onto at the moment. I have concrete ideas of what kind of life I want to achieve. So I keep going as long as it takes.

    updated his bio Oct 27, 2012
  9. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Stopped: CCSVI Scanning and Endovascular Angioplasty (Liberation Treatment)

    • Stopped: Feb 7, 2012
    stopped taking the treatment CCSVI Scanning and Endovascular Angioplasty (Liberation Treatment) Mar 18, 2012
  10. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    QOL

    • Bad Social
    • Good Mental
    • Good Physical
    completed the QOL survey for Mar 18, 2012 Mar 18, 2012
  11. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Betaferon Treatment Evaluation

    • Perceived effectiveness for MS (Multiple Sclerosis): ?Can't tell
    • Side Effects: ModerateModerateModerateModerateModerate
    • Adherence: NeverNeverNeverNeverNever
    • Burden: SomewhatSomewhatSomewhatSomewhatSomewhat
    Advice & Tips
    I tried stopping the Betaferon treatment to see if my mood and cognitive functions improve in the following weeks. The depression was getting too much to handle lately.
    Cost
    < $25 monthly
    added a treatment evaluation for Betaferon Mar 18, 2012
  12. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Stopped: Betaferon

    • Stopped: Mar 18, 2012
    • Reason: Personal research and Side effects too severe
    stopped taking the treatment Betaferon Mar 18, 2012
  13. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    CCSVI Scanning and Endovascular Angioplasty (Liberation Treatment)

      • Stopped: Feb 07, 2012
      • Reason:
      • Started: Feb 7, 2012
      • Last Dosage: one time
    • Purpose:
    updated the treatment CCSVI Scanning and Endovascular Angioplasty (Liberation Treatment) Mar 18, 2012
    • Added
      • Started: Feb 07, 2012
      • Dosage: one time
      • Feb 07, 2012
    • Stopped
      • Date: Feb 07, 2012
      • Feb 07, 2012
  14. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS
    star earnedstar notearnedstar notearned 1 star
    lost a star Nov 15, 2011
  15. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Neutral

    added an InstantMe for Jan 17, 2011 Jan 17, 2011 11:21AM

    Brain fog.

  16. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Bad

    added an InstantMe for Jan 6, 2011 Jan 06, 2011 1:29PM

    Brain fog, numbness

  17. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Bad

    added an InstantMe for Dec 20, 2010 Dec 20, 2010 10:00AM

    Gyenge és bizonytalan végtagok, gyenge koncentráló képesség, álmosság.

  18. 27101-thumb
    gubar
    Sex: M
    Data Quality: 1 star
    Sensation: None
    Overall: None
    Cognition: mild
    Vision: mild
    Speech: none
    Swallowing: none
    Upper limb: mild
    Walking: none
    I am: n
    I have:
    MS

    Bad

    added an InstantMe for Dec 18, 2010 Dec 18, 2010 12:51PM

    Gyenge, bizonytalan végtagok, nehéz koncentráció.