egbokmom's Journal

egbokmom: Sex: F; Data Quality: 1 star; MS: 32 yrs; Type: Secondary Progressive; Sensation: Moderate; Overall: Moderate; Cognition: moderate; Vision: moderate; Speech: moderate; Swallowing: moderate; Upper limb: moderate; Walking: moderate

egbokmom: Female, 59 years; Irvine, CA

Primary Condition: MS and 3 more ▼

Type: Secondary Progressive

First symptom: Jan 1981
Diagnosis: Jan 1983

egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Botox Treatment Evaluation
- Perceived effectiveness for Urinary Incontinence: None
- Side Effects: None
- Adherence: Always
- Burden: Not at all
egbokmom added a treatment evaluation for Botox from Jul 25, 2012 Jul 26, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Botox
- - Started: Jul 25, 2012
  - Current Dosage: 100units as needed
- Purpose: Urinary Incontinence
- View Latest Evaluation
egbokmom updated the treatment Botox Jul 26, 2012
- Added
  - Started: Jul 25, 2012
  - Dosage: 100units as needed
  - Purpose: Urinary Incontinence
  - Jul 25, 2012
- Evaluated
  - View Evaluation
  - Jul 25, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Urinary Incontinence
- First symptom: ?
- Diagnosis: ?
egbokmom added the condition Urinary Incontinence Jul 26, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Boniva Treatment Evaluation
- Perceived effectiveness for Other: ?Can't tell
- Side Effects: None
- Adherence: Sometimes
- Burden: A little
egbokmom added a treatment evaluation for Boniva from Feb 2, 2012 May 26, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Stopped: Boniva
- Stopped: Feb 2, 2012
- Reason: Did not seem to work
egbokmom stopped taking the treatment Boniva May 26, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Provigil
- - Started: Jan 1, 2003
  - Current Dosage: 200 mg daily
- Purpose: MS and Fatigue
egbokmom updated the treatment Provigil May 26, 2012
- Added
  - Started: Jan 01, 2003
  - Dosage: 400 mg daily
  - Purpose: MS (Multiple Sclerosis) and Fatigue
  - Jan 01, 2003
- Changed Dosage
  - Dosage: 200 mg daily
  - Mar 13, 2008
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Fosamax
- - Started: ?
  - Dosage: ?
- Purpose: Osteoporosis
egbokmom added the treatment Fosamax May 26, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Interferon beta-1b SubQ Injection
- - Started: ?
  - Dosage: ?
- Purpose: MS
egbokmom added the treatment Interferon beta-1b SubQ Injection May 26, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

Good
egbokmom added an InstantMe for Jan 25, 2012 Jan 25, 2012 6:22PM

I have gluten intolerance, NOT celiac disease
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
MSRS: 60
- Moderate Cognition
- Mild Vision
- Mild Speech
- Mild Swallowing
- Moderate Upper Limb
- Moderate Walking
- Mild Sensation
egbokmom completed the MSRS survey for Jan 25, 2012 Jan 25, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

190 lb BMI: 31.6
egbokmom updated her weight for Jan 25, 2012 Jan 25, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
CCSVI (Chronic Cerebrospinal Venous Insufficiency)
- First symptom: ?
- Diagnosis: Jun 1, 2008
egbokmom updated the condition CCSVI (Chronic Cerebrospinal Venous Insufficiency) Jan 25, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Osteoporosis
- First symptom: ?
- Diagnosis: ?
egbokmom updated the condition Osteoporosis Jan 25, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Symptom Update
- mild Sexual dysfunction
- moderate Word fishing
- moderate Lose train of thought
- mild Mood swings
- severe Depressed mood
- severe Excessive daytime sleepiness (somnolence)
- severe Walking slower
- severe Acid reflux
- moderate Brain lesions
- none Pain
- severe Walking problems
- severe Balance problems
- severe Fatigue
- none Vomiting
- moderate Brain fog
- moderate Emotional lability
- mild Insomnia
- mild Motion sickness
- mild Anxious mood
- moderate Numbness and Tingling with Pins and Needles
- none MS hug (tight chest or torso)
- moderate Numbness
- mild Vertigo
- moderate Allergies
- severe Bladder problems
- severe Heat intolerance
- mild Bowel problems
- severe Imbalance when walking
- See more
egbokmom updated her symptoms for Jan 25, 2012 Jan 25, 2012
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

Good
egbokmom added an InstantMe for Oct 3, 2011 Oct 03, 2011 9:25PM

because I figured out I have celiac disease
egbokmom

Sex: F

Data Quality: 1 star

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

Bad
egbokmom added an InstantMe for Aug 10, 2011 Aug 10, 2011 11:40PM

depressed
weight
lapse in activity
poor living conditions
frustration