i am a mom of 2 and been with my husband for 27 yrs,been happily married for 15 yrs!my family is a big part of my life!just recently became a grandma!But i would like to say "my husband means everything to me,he's my whole world"i just found out i have MS,in DEC2011!!!i recently found out i have PPMS in APRIL 2012!!!!!currently no drugs for PPMS and i am very upset!
my main objective ,is to learn and be active about MS!
i would describe my MS as debilitating in terms of its the not knowing how you will end up,but you can live a full and happy life!And the best advice i can give is to always be positive ,as this disease ,this disease will do it to you (not be so stressed)try to keep smilin,every if you are in pain and are sore!
i take pheytoin(dilantins)for my seizures and i have been seizure free for 12 yr and i take tegritol for my MS! I also have CPD(CHRONIC PAIN DISORDER)
i just found out in DEC2011,that i have MS and i am learning quite a bit!!!!i also found out i have degenerative disc disease!!
i went back to the doctors on april 17 th,2012,they have diagnosed my ms ,as progressive,so i have to participate in a clinical trail,for a new med,or my last option would be chemo!i also now have to see a counsellor cause i'm all over the place,and depressed,as everything finally hit me ,plus now i have to go to therapy!currently their are no drugs for PPMS,and they would like me in clinical trials for oreclizumab(oratorio),but they don't know if i will be eligable due to under lying health conditions(epilepsy,and heart surgury at 3,but no heart trouble since,i'm also seizure free since 2000),so now i'm thinking of talking to my neurologist about LDN"S
Aug 10, 2010
Jan 10, 2013