bbblooze's Journal

bbblooze: Sex: F; Data Quality: 0 stars; MS: 6 yrs; Type: Progressive Relapsing; Sensation: Moderate; Overall: Mild; Cognition: moderate; Vision: moderate; Speech: mild; Swallowing: mild; Upper limb: moderate; Walking: moderate

bbblooze: Female, 54 years; Henderson, NV

Primary Condition: MS

Type: Progressive Relapsing

First symptom: Apr 2007
Diagnosis: Nov 2007

bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
QOL
- Worst Social
- Bad Mental
- Bad Physical
bbblooze completed the QOL survey for Mar 20, 2013 Mar 20, 2013

I love this. This says my QOL is improving, what types of things have made it improve? I am sorry if l disagree with this site and its charting and methodology. There is no QOL when you are stuck in bed 24/7 and in pain and nauseous. Saving up morphine supositories to end this stupid ride.
1 comment from other members. Only showing public users' comments. Sign up to see all comments!
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Symptom Update
- moderate Anxious mood
- severe Back pain
- none Bladder problems
- none Bleeding gums
- severe Blurry vision
- severe Bowel problems
- moderate Brain fog
- moderate Depressed mood
- moderate Dizziness with hypotension upon standing
- severe Emotional lability
- severe Excessive daytime sleepiness (somnolence)
- severe Fatigue
- severe Fluid retention weight gain
- severe Flu like symptoms
- mild Hair loss
- severe Insomnia
- none Loss of appetite
- moderate Memory lapses (brain blinks)
- moderate Mood swings
- moderate Muscle and joint pain
- severe Nausea
- moderate Pain
- severe Psoriatic plaques (scaly patches)
- severe Sexual dysfunction
- severe Stiffness/Spasticity
- mild Vision loss in left eye
- See more
bbblooze updated her symptoms for Mar 20, 2013 Mar 20, 2013
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

Good
bbblooze added an InstantMe for Apr 26, 2012 Apr 26, 2012 5:24AM

Stopped gylenia, stopped all meds from MS Dr. They had me on methadone and l almost died in Sept. QUACKERY! I was only getting the nurse , never the Dr. I will never go back, never take another med for MS until the bottle says, WILL CURE MS.
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
MSRS: 42
- Mild Cognition
- Mild Vision
- None Speech
- None Swallowing
- Mild Upper Limb
- Mild Walking
- Mild Sensation
bbblooze completed the MSRS survey for Apr 26, 2012 Apr 26, 2012
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Psychiatrist (med management)
- - Started: ?
  - Dosage: ?
- Purpose:
bbblooze added the treatment Psychiatrist (med management) Mar 26, 2012

20 yrs ago when l broke back, became clinically depressed
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

0 stars
bbblooze lost a star Feb 09, 2012
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

Bad
bbblooze added an InstantMe for Dec 22, 2011 Dec 22, 2011 5:04AM

Am going through whole body pain with terrible stiffness the cannot explain.
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

Bad
bbblooze added an InstantMe for Dec 2, 2011 Dec 02, 2011 5:07AM

muscles very sore almost like feeling of after bad bruising, joints very stiff with rigor.
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
MSRS: 46
- Mild Cognition
- None Vision
- None Speech
- None Swallowing
- None Upper Limb
- Total Disability Walking
- Moderate Sensation
bbblooze completed the MSRS survey for Dec 2, 2011 Dec 02, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Symptom Update
bbblooze updated her symptoms for Dec 2, 2011 Dec 02, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
MSRS: 60
- Moderate Cognition
- None Vision
- None Speech
- Mild Swallowing
- Mild Upper Limb
- Total Disability Walking
- Total Disability Sensation
bbblooze completed the MSRS survey for Nov 11, 2011 Nov 11, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

157 lb BMI: 22.5
bbblooze updated her weight for Nov 11, 2011 Nov 11, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Fingolimod Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): None
- Side Effects: Severe
- Adherence: Always
- Burden: Very
Advice & Tips

Do not take this poison. The side effects are far worse than the mere MS alone!!!! I was /am still in so much pain my pain meds have tripled.

Cost

< $25 monthly

bbblooze added a treatment evaluation for Fingolimod from Nov 3, 2011 Nov 11, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Stopped: Fingolimod
- Stopped: Nov 3, 2011
- Reason: Did not seem to work and Side effects too severe
bbblooze stopped taking the treatment Fingolimod Nov 11, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
QOL
- Bad Social
- Bad Mental
- Bad Physical
bbblooze completed the QOL survey for Nov 11, 2011 Nov 11, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Copaxone Treatment Evaluation
- Perceived effectiveness for MS (Multiple Sclerosis): None
- Perceived effectiveness for Fatigue: None
- Side Effects: Moderate
- Adherence: Always
- Burden: A little
Advice & Tips

I decided the side effects were not worth the unseen bebefits in 6 mo. of taking the drug and discontinued

bbblooze added a treatment evaluation for Copaxone from Mar 31, 2011 Nov 11, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Symptom Update
- severe Excessive daytime sleepiness (somnolence)
- severe Loss of appetite
- severe Brain fog
- severe Depressed mood
- moderate Blurry vision
- severe Stiffness/Spasticity
- severe Pain
- mild Vision loss in left eye
- severe Emotional lability
- severe Fatigue
- moderate Anxious mood
- mild Bladder problems
- severe Bowel problems
- moderate Sexual dysfunction
- moderate Mood swings
- severe Hair loss
- moderate Insomnia
- severe Memory lapses (brain blinks)
- See more
bbblooze updated her symptoms for Nov 11, 2011 Nov 11, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Baclofen
- - Started: Jul 1, 2006
  - Current Dosage: 60 mg daily
- Purpose: MS
bbblooze updated the treatment Baclofen Nov 11, 2011
- Added
  - Started: Jul 01, 2006
  - Dosage: 30 mg daily
  - Purpose: MS (Multiple Sclerosis)
  - Jul 01, 2006
- Changed Dosage
  - Dosage: 60 mg daily
  - May 15, 2010
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS
Fingolimod
- - Stopped: Nov 03, 2011
  - Reason: Did not seem to work and Side effects too severe
  - Started: Jun 1, 2011
  - Last Dosage: 0.5 mg daily
- Purpose: MS
- View Latest Evaluation
bbblooze updated the treatment Fingolimod Nov 11, 2011
- Added
  - Started: Jun 01, 2011
  - Dosage: 0.5 mg daily
  - Purpose: MS (Multiple Sclerosis)
  - Jun 01, 2011
- Stopped
  - Date: Nov 03, 2011
  - Reason: Did not seem to work and Side effects too severe
  - Nov 03, 2011
- Evaluated
  - View Evaluation
  - Nov 03, 2011
bbblooze

Sex: F

Data Quality: 0 stars

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: moderate

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: moderate

I am: g

I have:
MS

1 star
bbblooze earned a star! Nov 11, 2011
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