I missed 1 dose of medications once on 2 different days! I can't say this doesn't happen because it did. I have a set time in which I take my meds. I can excuse the first miss. That was during the weekend. There was a lot of things going on and I was terribly busy. But I just simply forgot to take the second one on Tuesday morning. I dreaded a getting a seizure and sure enough, Wednesday morning when I woke up and got out of bed...Bang! That's how they happen for me. When I wake up. All I do is fall asleep for a few minutes then I awake. It was so bad. I felt fine the rest of the day and was able to eat. This morning (Wed.) was just a repeat of yesterday. Prays they've settled down.
- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
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2 seizures6 weeks ago
- BrainStorm
- Female, 51 years
- Corpus Christi, TX
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
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2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Apr 7-13, 2013 Apr 11, 2013Seizure Meter
- 2 unconscious seizures
- Triggers: Change in or missed medication
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Mar 24-30, 2013 Apr 11, 2013Seizure Meter
- No seizures
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Mar 31 - Apr 6, 2013 Apr 11, 2013Seizure Meter
- No seizures
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Mar 17-23, 2013 Mar 21, 2013Seizure Meter
- 1 unconscious seizure
- Triggers: Change in or missed medication, Bright or flashing lights, Being very tired or lack of sleep, and Hormone fluctuations
Mar.18 - 1 Morning Seizure
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Mar 10-16, 2013 Mar 21, 2013Seizure Meter
- No seizures
Great!
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Mar 3-9, 2013 Mar 21, 2013Seizure Meter
- No seizures
Happy!
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Feb 24 - Mar 2, 2013 Mar 21, 2013Seizure Meter
- 1 conscious seizure
1 morning seizure
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Feb 17-23, 2013 Mar 21, 2013Seizure Meter
- 3 conscious seizures
02/08/13-1 morning seizure
0/19/13- 1 morning, 1 afternoon seizure -
- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Jan 20-26, 2013 Mar 21, 2013Seizure Meter
- 2 conscious seizures
- 2 unconscious seizures
- Triggers: Change in or missed medication, Bright or flashing lights, and Strong emotions
Well I almost made it to the end of the seventh month.
Friday, Jan. 25, I had 3-4 seizures repeatedly?? It was a bad day??
Saturday morning, Jan. 26, 1 seizure.
It was nice being seizure free while all those months. That supplement really helped. -
- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Jan 27 - Feb 2, 2013 Mar 21, 2013Seizure Meter
- 1 conscious seizure
- 1 unconscious seizure
Feb. 02 Morning: 2 seizures.
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Dec 30, 2012 - Jan 5, 2013 Mar 21, 2013Seizure Meter
- No seizures
Here I am at 6 months. Without the supplement and no seizures yet. I feel good. Is hoping...that's all I have to hold on to. 6 months...
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Nov 25 - Dec 1, 2012 Mar 21, 2013Seizure Meter
- No seizures
5 months. I have been doing good without the supplement. No seizures.
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Oct 28 - Nov 3, 2012 Mar 21, 2013Seizure Meter
- No seizures
4 months seizure free. The longest I have ever gone is 6 months and that was after my brain surgery. They suddenly started up again just like before. Here I am at 4 months with the aid of the dilantin supplement. Maybe I will see a new year with no seizures.
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Sep 30 - Oct 6, 2012 Mar 21, 2013Seizure Meter
- No seizures
3 months seizure free with the dilantin supplement at bedtime.
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Aug 26 - Sep 1, 2012 Mar 21, 2013Seizure Meter
- No seizures
2 months No seizures. emoticon smile I feel good. My mind feels clear and strong. I am happy but I am not going to get excited about this yet.
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Nov 11-17, 2012 Mar 21, 2013Seizure Meter
- No seizures
I am into my fifth month without a seizure. Sometime this month I am not certain of the date my neuro said my dilantin level was too high and he ordered me to stop taking the dilantin supplement. Naturally I did not want to hear this reminding him of how well I was doing but he said not to take it anymore.
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Sep 9-15, 2012 Mar 21, 2013Seizure Meter
- No seizures
Sometimes I get a very slight feeling...as if...but nothing occurs. It's very, very slight. Too slight to describe yet I sense some seizure activity may be trying to occur...but it fades away. No seizures to this day. emoticon smile
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Jul 1-7, 2012 Mar 21, 2013Seizure Meter
- No seizures
On my last visit with my neuro we spoke about my seizures and how they mostly occur in the morning. He thought maybe a little bit more would prevent them. I didn't want to take anymore medicine but he assured me that it would be a very small dose of dilantin only to supplement the one I am already taking. He prescribed to me a child's dose of dilantin to be taken at bedtime. I started taking it July 01.
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm completed the Seizure Meter for the week of Jul 29 - Aug 4, 2012 Mar 21, 2013Seizure Meter
- No seizures
The dilantin supplement seems to be working. On the average I usually seize 2-4 times a month and here I have gone a whole month without having one seizure. Is not going to get my hopes up though.
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- BrainStorm
- Data Quality: 2 stars
-
- Sex: F
- Age: 51y
- Duration: 38 yrs
- PRO survey: PRO 3
-
Quality of Life:
- Mental: Moderate
- Physical: Mild
-
2 seizures6 weeks ago
- I am: g
I have:EpilepsyBrainStorm updated the treatment Dilantin Infatabs Mar 22, 2013Dilantin Infatabs
- Started: Jul 1, 2012
- Current Dosage: 50 mg daily
- Purpose: Epilepsy
- Show more