PatientsLikeMe ™

Had a sleep study completed Sunday night. I had put it off for 9 months because of the $1300. price tag. I finally agreed - and I failed. I slept all night, with no signs of sleep apnea. NO NOTHING. I am upset.

Went toa new doctor yesterday upon the referral of my neurologist. This new Neuro has more training. He states that I DO NOT HAVE PARKINSON'S (after all these years). He believes that I may have Progressive Supranuclear Palsy or Multiple System Atrophy. Not what I wanted to hear.

Finally got my completed disability claim from my neurologist, after almost 3 weeks. I am not complaining . I just hoped to be off from work already . Thought that I woulx never say that. I will turn it in on monday.

Having another MRI done tomorrow. Been on my new increased dose of Sinemet (2 tablets 4X a day of 25-100. I am fine during the day, but at night I get jerky, stiff movements. It may be dystonia, dykinesia. I believe that it may be related to high levels of levodopa which can bring on these symptoms.

Went to the foot doctor today. I will now need to start wearing a foot/ankle brace. This is due to PD weakening my tendons along with other muscles, etc.

Trying to decide about applying for disabilty and quiting work.