Interferon beta-1b SubQ Injection Treatment Report : PatientsLikeMe

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Home > Community Treatment Reports and Side Effects > Interferon beta-1b SubQ Injection Treatment Report

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What is Interferon beta-1b SubQ Injection?

Interferon beta-1b is a drug in the interferon family used to treat multiple sclerosis. It is administered by sub-cutaneous injection and has been shown to slow the advance of the affliction as well as reduce the frequency of attacks.

Reported Purpose & Efficacy

Reasons and Efficacy
Purpose	# of patients	# of patients with evaluations Efficacy
MS (Multiple Sclerosis)	1306	396
Other	23	6
General health	13	7
Fatigue	11	5
Walking problems	10	3
Improve mobility	7	3

See all 38 reasons taken ▼

See all 982 patients currently taking Interferon beta-1b SubQ Injection

Mouse over the table for more information

Reported Side Effects

Side effects as an overall problem

Severe	75
Moderate	118
Mild	157
None	69

Commonly reported side effects, conditions, and hospitalizations associated with Interferon beta-1b SubQ Injection

See all 133 reported side effects ▼ See top 6 reported side effects ▲
Flu like symptoms	125	125
Injection site pain	87	87
Bruising	70	70
Headaches	59	59
Feel lousy	57	57
Depressed mood	48	48
Sleep problems	37	37
Injection site reaction	34	34
Fever	34	34
Elevated liver enzymes	22	22
Chills/fever	13	13
Suicidal thoughts or urges	12	12
Fatigue	10	10
Injection site bruising	10	10
Injection site redness	9	9
Body Aches	9	9
Low white blood cell count (leukopenia)	6	6
Developed Antibodies	3	3
Weight gain	3	3
Injection site burning	3	3
Hospitalization	3	3
Insomnia	3	3
Increased or worsened depression	3	3
Rash or skin problems	3	3
Occasional flu like symptoms	3	3
Difficulty sleeping through night	3	3
Injection site infection	3	3
Generalized muscle aches	3	3
Pain	3	3
Migraine headaches	3	3
Injection site irritation	2	2
Nausea	2	2
Mood swings	2	2
Spasms	2	2
Heat intolerance	2	2
Night sweats	2	2
Bruiselike feeling under skin	2	2
Anxiety and frustration	2	2
Aching burning throbbing body pain	2	2
Joint pain	2	2
Exhaustion	2	2
Chills	2	2
Rashes (redness, swelling)	2	2
Injection site swelling	2	2
Low red blood cell count	2	2
Stiffness in legs after injection	2	2
Cold chills	2	2
Feel miserable after treatment	2	2
Injection site discoloration	2	2
Injection site unavailable due to reaction	2	2
Acne	1	1
Lightheadedness	1	1
Back pain	1	1
Tiredness	1	1
Facial swelling	1	1
Skin abscess	1	1
Shaky hands	1	1
Redness	1	1
Red blotches	1	1
Elevated blood pressure	1	1
Swollen glands	1	1
Coma	1	1
Headaches in front right side of forehead	1	1
Sore throat (Pharyngitis)	1	1
Pain in spine	1	1
Nausea sometimes	1	1
Stiffness in legs	1	1
Hot flashes	1	1
Temperature dysregulation	1	1
Brain fog	1	1
Allergic reaction	1	1
Throbbing legs	1	1
Dizziness (vertigo)	1	1
Muscle and joint pain	1	1
Painful lumps under the skin	1	1
Memory problems	1	1
Shivering	1	1
Pain in feet	1	1
Soreness	1	1
Muscle aches	1	1
Vitamin B12 deficiency	1	1
Sinus congestion	1	1
Bruise easily	1	1
red marks on skin	1	1
Toenails purple	1	1
Neutrophilia (elevated neutrophils)	1	1
Metallic taste in mouth	1	1
Liver failure (acute)	1	1
mild effects	1	1
Major Depressive Disorder	1	1
Depression with suicidal thoughts	1	1
Pain worsened	1	1
Excessive daytime sleepiness (somnolence)	1	1
Reminder of condition	1	1
Depression with anxiety	1	1
Sexual dysfunction	1	1
Spasticity	1	1
Short period flu like symptoms	1	1
Hypothyroidism	1	1
Worsening depression	1	1
Bowel problems	1	1
Itching (pruritus)	1	1
Ringing in ears (tinnitus)	1	1
Injection site lumps and bumps	1	1
Cotton wool spots	1	1
Fuzzy thinking	1	1
Sudden mood swing from mania to depression with anxiety	1	1
Mental fatigue or exhaustion	1	1
Multiple Sclerosis symptoms increased	1	1
Psychosis Disorder	1	1
Cellulitis	1	1
Fingernails separating	1	1
Headache after injection	1	1
Lymphadenopathy	1	1
Mild side effects	1	1
Tremor	1	1
aches and paines, low grade fever,	1	1
Injection site arm muscle soreness pain that lasts a few hours	1	1
I'm broke	1	1
Deep skin inflammation	1	1
Anxious mood	1	1
Nasal congestion	1	1
Muscle weakness	1	1
Headaches all day	1	1
Runny nose (rhinorrhea)	1	1
Flu like symptoms on night of shot	1	1
Muscle pain	1	1
Sweating excessive	1	1
Neurological fatigue	1	1
Psoriasis at injection site	1	1
Muscle fatigue	1	1
Burning Pain	1	1
Social withdrawal	1	1

Reported Dosages

Frequently reported dosages based on patients currently taking Interferon beta-1b SubQ Injection. See all 94 dosages ►

daily	weekly	0.3 mg weekly	0.25 mg	0.25 mg every other day	0.3 mg	0.3 mg every other day	0.3 mg daily	1 mg every other day	1 mg
8	8	11	9	9	42	582	80	25	21

Reported Stop Reasons

Why Patients Stopped Taking Interferon beta-1b SubQ Injection (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	269
Did not seem to work	247
Doctor's advice	241
Other	127
Expense	25
Change in health plan coverage	22
Personal research	14
Course of treatment ended	14
Not indicated	13

See all 680 patients who’ve stopped taking Interferon beta-1b SubQ Injection

Reported Duration See details about how long patients take this treatment ▼ Reported Duration Hide details ▲

Currently Taking Interferon beta-1b SubQ Injection

A bar graph

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
0	7	11	19	40	227

Stopped Taking Interferon beta-1b SubQ Injection

A bar graph

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
27	52	84	117	129	254

Reported Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Adherence of Interferon beta-1b SubQ Injection

Always	317	76%
Usually	82	20%
Sometimes	8	2%
Never	12	3%

Burden

Difficulty being on treatment

Burden of Interferon beta-1b SubQ Injection

Very	44	11%
Somewhat	121	29%
A little	145	35%
Not at all	109	26%

Cost

Paid out of pocket

Cost of Interferon beta-1b SubQ Injection

$200+	28	9%
$100-199	17	5%
$50-99	50	16%
$25-49	75	24%
< $25	145	46%

See more information, including instructions, precautions, side effects, and interactions.

Patient Evaluations

See all 419 patient evaluations

babybunny

Sex: F

Sensation: Mild

Overall: Mild

Cognition: moderate

Vision: mild

Speech: none

Swallowing: none

Upper limb: moderate

Walking: severe
babybunny

250 mcg every other day

since May 09, 2010
Efficacy Major for MS (Multiple Sclerosis)
Side Effects Mild
Advice/Tips I had the nurses injecting me as I lost too much Grip in my hands to do it myself. Site reactions differ, but normally get red blotches that come up like bru... See full evaluation

trey06

Sex: M

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: moderate

Walking: mild
trey06

0.3 mg every other day

since May 28, 2011
Efficacy Moderate for MS (Multiple Sclerosis)
Side Effects Moderate
Advice/Tips I could not get over the flu like symptoms, And injection site reactions. See full evaluation

Aturo

Sex: M

Sensation: Moderate

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe
Aturo

0.3 mg daily

since Nov 10, 2010
Efficacy None for MS (Multiple Sclerosis)
Side Effects None
Advice/Tips For some this treatment works as for me it didn't. I would like to THANK All those at NOVARTISE for their help and followup care. After careful thought... See full evaluation

See all 419 patient evaluations

Report created on February 12, 2012.

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