My Profile

• What sort of information should I share in the About Me section?

  You can tell your story in the About Me section of your profile.  How would you describe your medical history to another patient like you? Use the Short Bio to describe yourself in a few sentences.  Use the Long Bio (including pictures!) to share more details.

• How do I share information about my health on my profile?

  Sharing information on your profile is a great way to learn more about how you’re doing over time.  It’s also a great way to let others know what you’ve been through and where you are on your journey as a patient.

  Get stared by filling out your condition history.  From there, you can add health information to your profile by taking surveys including Instant Me and Quality of Life. You might also have specific surveys for the conditions you’ve added to your profile. For more information, check out the details on the My Profile page.

• What is the box next to my profile picture called and what does it mean?

  The box is called your ‘patient icon’ or ‘nugget’ (short for nugget of information).  It summarizes your current health status for other members. If you click the “i” in the bottom right corner of the nugget, you’ll get an expanded view explaining what each of the icons stands for and what part of your profile it reflects. Stars, which reflect how much health information a person has shared, are displayed on the left hand side of the patient icon (nugget).

  

• What do the stars mean? How do I get three stars (and a free T-shirt)?

  Profile stars indicate how much health information you’ve shared. The more you share, the more you can understand about your own experience and the more you are helping others to learn.

   

  

   

  All 3 star members are eligible for a free PatientsLikeMe t-shirt. Check out your Get 3 stars! page to find out how to get your 3 stars. Once you have 3 stars, go to the 3 stars page to request your free t-shirt.  

   

  

• How do I add a profile picture?

  To upload a picture from your computer to add to your profile:

  1. Go to the picture section of your profile.
  2. Click on “Browse…” to find a picture on your computer that you want to use.
  3. Once you’ve navigated to the file, click on “Upload Picture".
  4. When the picture is done uploading you'll see a green bar at the top with the message "Your profile picture has been updated.

   

  

• What is PatientLikeMe’s Privacy Policy?

  We urge you to read both our Privacy Policy to learn how your information is used and our Openness Philosophy to find out how you help both yourself and other patients by making your profile public.

• What information is visible on public profiles?

  You’re welcome to share as much or as little information as you’re comfortable with on PatientsLikeMe. If you decide to share any of the following information, here’s what would be visible on your public profile:
  
  Your username and profile photo.  If you’d like to remain anonymous, we suggest using a unique username and profile picture—one different than anywhere else on the Internet.  
  
  Charts featuring information you share about your condition(s) such as outcome scores, lab values, treatments, treatment evaluations, symptoms and weight.

  

   

  Demographic information including age, gender and location.
  
  Biographical information including any text and images added to your About Me section.

  

   

   

  Your Journal, which includes a feed of all of your recent site activity (except forum posts) as well as any annotations, notes or photos you add to those entries.  

  

   

   

Need more help? Email support@patientslikeme.com

Last updated: April 16, 2013