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jamie James Heywood |
Co-Founder, Chairman | I am the Co-Founder with Ben and Jeff and Chairman of PatientsLikeMe. and the Founder and Former CEO of the ALS Therapy Development Institute. Since Stephens (alsking101) diagnosis in 1998, we have learned so much about what patients need to know. We hope to help patients share their knowledge with others. PatientsLikeMe and ALS TDI come from the concept of wanting to find answers for todays patients. |
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mmassagli Michael P. Massagli, PhD |
Research Scientist | Michael P. Massagli, PhD (University of Wisconsin-Madison, Sociology, 1984) joined the PatientsLikeMe team in June 2007. I'm a sociologist and social statistician. My previous research has focused on survey methods and measurement of health outcomes and patient experience of care, looking, for example, at factors affecting the quality of survey data, employment experience and health-related quality of life of persons with AIDS, impact of trauma on mental health and physical functioning in refugee populations, and patient perceptions of health care quality. |
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sokun Sally Okun, RN, MMHS |
Health Data Integrity Manager | I joined the team in May '08 as Health Data Integrity Manager. It's my job to be sure that information entered by patients is accurately captured in our databases. This is important for many reasons, not the least of which is the need to be good stewards of the data entrusted to us by the patients who use our site. I've been a nurse for many years spending much of my career working with people living with the daily challenges of serious & advancing illnesses. My husband Scott and I have two wonderful daughters, a great son-in-law and in April 2010 we'll welcome our first grandchild! |
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adarowski Adam Darowski |
Web Developer | I'm Adam. I've been a web developer for PatientsLikeMe since October 2009 (though I had a crush on them for much longer than that). Markup (HTML) and style (CSS) is what I like to do, and luckily I get to do plenty of it at PatientsLikeMe. |
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Sharry Sharry Plume |
Support | I am honored to be part of the support team at PatientsLikeMe, passionately driven to provide world-class customer support and service to you. I specialize in managing customer support requests, aiding in the research and resolution of your support issues. I look forward to working with you to enhance your PatientsLikeMe customer support experience. |
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lscanlon Lori Scanlon |
Marketing Manager | I’m very excited to be spearheading marketing and communications efforts at PatientsLikeMe. It’s an honor to join this smart, passionate team of individuals dedicated to changing patients' lives and the healthcare paradigm as we know it. If I can be of any assistance, feel free to contact me at lscanlon@patientslikeme.com |
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dwilliams David S. Williams III |
Founding Executive, Marketing and Business Development | Hi, everyone. I'm David and I'm a member of the founding executive team. Through PatientsLikeMe, we can all make a difference in how diseases are treated so everyone can continue to enjoy life! Feel free to contact me with any questions or ideas! My wife Rosemary and I have a son, David IV, and a daughter, Soleil. |
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Emma Emma Willey |
Community Manager | Hello, I'm a member of the PatientsLikeMe team and I manage the HIV and ALS communities. I am one of 3 community managers and we are on hand to help you with any questions or issues you might have as you start filling out your profile, using the tools and as you explore the site. It is great to hear from you, we welcome your feedback and ideas, so please keep in touch. |
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thorgan Tim Horgan |
Community Manager | I manage the community team at PatientsLikeMe, helping members make the most of the site and insuring that the site works for you. |
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rbradley Richard Bradley |
Pharmacovigilance Manager | I began working for PLM in August 09. I left the Pharmaceutical Industry after 8 years, working in drug safety for clinical trials and post-marketed drug event reporting. Prior to that I spent a little over 25 years providing health care to Navy and Marine Corps personnel in various roles as a Navy Hospital Corpsman and later a Navy Nurse. I look forward to my new role making sure the invaluable experiences, involving drug treatments and the adverse experiences that are shared get reported to the manufacturers and authorities to help create safer, more effective products. |
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JeanaFrost Jeana Frost, PhD |
Research Scientist | I joined PatientsLikeMe as a researcher because of my commitment to helping people take control over their healthcare decisions and personal wellbeing. My background is in media and psychology. As a graduate student at the MIT Media Lab, I built tools for people with diabetes to document and discuss personal health practice that impacts health outcomes. After receiving my degree, I did a post-doctoral fellowship in behavioral sciences and technology at Boston Medical Center. I feel lucky to have found PatientsLikeMe, a group and effort so close to my heart and passion. |
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moakes Maureen Oakes, MPH |
Product Manager | I'm thrilled to be a part of the PatientsLikeMe team. If I can be of any assistance, please feel free to contact me! |
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scottlistfield Scott Listfield |
Senior Designer | Hi - I'm Scott and I'm a visual designer here at PatientsLikeMe. My primary background is in information visualization - a very clever name for what most people call charts and graphs. In addition to my work here, I'm a practicing artist - in certain, very small circles, I'm known for my paintings of astronauts. you can see them at my personal site: www.astronautdinosaur.com |
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tvaughan Timothy Vaughan, PhD |
Research Scientist | I'm a Research Scientist on the R&D team here at PatientsLikeMe. I grew up in Cleveland, OH, but have lived in the Boston, MA area for almost 20 years. Since earning my Ph.D. in physics in 1992, I have used computer simulation and modeling in a wide variety of scientific/medical problems. I am now using that experience to try to understand and ultimately improve the outcomes of patients at PLM. Thank you so much for sharing your data with us! |
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cnecochea Cris Necochea |
Head User Experience Engineer | Hello, I'm Cris. I have worked with web technologies since 1997; the bulk of which I spent working with Jamie and Jeff back at ALS TDF, recently renamed as the ALS Therapy Development Institute. I'm here to try to ensure the best possible user experience for all visitors to PatientsLikeMe. |
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mcowlishaw Megan Cowlishaw |
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rich.t Rich Thornett |
Software Developer | Hi, I'm Rich. I'm a software developer/enthusiast who works on the code behind PatientsLikeMe. I enjoy building new features for the site and am particularly interested in ways to leverage social graphs with disease profile data to bring useful information to light. If you have ideas for the site on this or any front, please let us know. |
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jameskebinger James Kebinger |
Software Engineer | I'm excited to be a part of the Patients Like Me team. I'm a web developer with interests in machine learning and information visualization. When I'm not at work I enjoy volunteering, being outside, reading, cooking, and watching improv comedy. |
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jeremy Jeremy Weiskotten |
Software Developer | I'm a software engineer on the PatientsLikeMe team. This is a great team of smart, dedicated, passionate people who all work hard on a very big challenge. We're busy building new tools and designing our upcoming communities, but the door is always open! Let me know if you have any questions, issues, or suggestions by emailing me at jweiskotten@patientslikeme.com. |
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bheywood Ben Heywood |
Co-Founder, President | I am one of the founders of PatientsLikeMe. We started PatientsLikeMe to help patients learn from our family's experience after my brother Stephen was diagnosed with ALS. We hope you find the site useful - please let us know if you have any suggestions or improvements. Look for our family's story in the documentary SO MUCH SO FAST which aired on PBS's Frontline. |
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