Interferon beta-1b SubQ Injection Report for Patients Like You

Filter by:

All
Start typing to see suggestions

patients

Home > Community Treatment Reports and Side Effects > Interferon beta-1b SubQ Injection Treatment Report

You appear to have JavaScript disabled in your browser. PatientsLikeMe relies on JavaScript and Cookies to deliver the best possible experience to you. How do I enable JavaScript?

What is Interferon beta-1b SubQ Injection?

Interferon beta-1b is a drug in the interferon family used to treat multiple sclerosis. It is administered by sub-cutaneous injection and has been shown to slow the advance of the affliction as well as reduce the frequency of attacks.

Reported Purpose & Efficacy

Reasons and Efficacy
Purpose	# of patients	# of patients with evaluations Efficacy
MS (Multiple Sclerosis)	1379	412
Other	22	5
General health	13	7
Fatigue	11	5
Walking problems	8	2
Stiffness/Spasticity	7	2

See all 38 reasons taken ▼

See all 995 patients currently taking Interferon beta-1b SubQ Injection

Mouse over the table for more information

Reported Side Effects

Side effects as an overall problem

Severe	75
Moderate	123
Mild	166
None	70

Commonly reported side effects, conditions, and hospitalizations associated with Interferon beta-1b SubQ Injection

See all 142 reported side effects ▼ See top 6 reported side effects ▲
Flu like symptoms	132	132
Injection site pain	87	87
Bruising	71	71
Headaches	60	60
Feel lousy	57	57
Depressed mood	49	49
Injection site reaction	39	39
Sleep problems	37	37
Fever	36	36
Elevated liver enzymes	22	22
Chills/fever	14	14
Suicidal thoughts or urges	12	12
Fatigue	10	10
Body Aches	10	10
Injection site bruising	10	10
Injection site redness	9	9
Low white blood cell count (leukopenia)	7	7
Hospitalization	5	5
Difficulty sleeping through night	4	4
Pain	3	3
Developed Antibodies	3	3
Weight gain	3	3
Increased or worsened depression	3	3
Injection site infection	3	3
Injection site burning	3	3
Occasional flu like symptoms	3	3
Migraine headaches	3	3
Rash or skin problems	3	3
Night sweats	3	3
Mood swings	3	3
Generalized muscle aches	3	3
Insomnia	3	3
Injection site discoloration	2	2
Stiffness in legs after injection	2	2
Bruiselike feeling under skin	2	2
Exhaustion	2	2
Anxiety and frustration	2	2
Nausea	2	2
Aching burning throbbing body pain	2	2
Injection site unavailable due to reaction	2	2
Low red blood cell count	2	2
Rashes (redness, swelling)	2	2
Major Depressive Disorder	2	2
Joint pain	2	2
Injection site swelling	2	2
Chills	2	2
Anxious mood	2	2
Skin necrosis	2	2
Cold chills	2	2
Heat intolerance	2	2
Feel miserable after treatment	2	2
Injection site irritation	2	2
Spasms	2	2
Toenails purple	1	1
Metallic taste in mouth	1	1
Liver failure (acute)	1	1
mild effects	1	1
Depression with suicidal thoughts	1	1
Pain worsened	1	1
Reminder of condition	1	1
Depression with anxiety	1	1
Spasticity	1	1
Short period flu like symptoms	1	1
Worsening depression	1	1
Injection site lumps and bumps	1	1
Cotton wool spots	1	1
Fuzzy thinking	1	1
Sudden mood swing from mania to depression with anxiety	1	1
Mental fatigue or exhaustion	1	1
Multiple Sclerosis symptoms increased	1	1
Memory and cognition problems	1	1
Fingernails separating	1	1
Headache after injection	1	1
Mild side effects	1	1
aches and paines, low grade fever,	1	1
Injection site arm muscle soreness pain that lasts a few hours	1	1
I'm broke	1	1
Deep skin inflammation	1	1
Headaches all day	1	1
Occasional injection site welt	1	1
Flu like symptoms on night of shot	1	1
Skin abscess	1	1
Headaches in front right side of forehead	1	1
Painful lumps under the skin	1	1
Neutrophilia (elevated neutrophils)	1	1
Hypothyroidism	1	1
Psychosis Disorder	1	1
Cellulitis	1	1
Lymphadenopathy	1	1
Bruise easily	1	1
Tremor	1	1
Ringing in ears (tinnitus)	1	1
Itching (pruritus)	1	1
Bowel problems	1	1
Sexual dysfunction	1	1
Excessive daytime sleepiness (somnolence)	1	1
Memory problems	1	1
Brain fog	1	1
Temperature dysregulation	1	1
Hot flashes	1	1
Stiffness in legs	1	1
Awakening due to pain	1	1
Pain in spine	1	1
Sore throat (Pharyngitis)	1	1
Swollen glands	1	1
UTI symptoms	1	1
Elevated blood pressure	1	1
Stomach pain	1	1
Shaky hands	1	1
Back pain	1	1
Nasal congestion	1	1
Muscle weakness	1	1
Runny nose (rhinorrhea)	1	1
Muscle pain	1	1
Sweating excessive	1	1
Neurological fatigue	1	1
Psoriasis at injection site	1	1
Numbness in tongue	1	1
Muscle fatigue	1	1
Burning Pain	1	1
Social withdrawal	1	1
Acne breakout	1	1
Lightheadedness	1	1
Tiredness	1	1
Limping in right leg	1	1
Facial swelling	1	1
Redness	1	1
Red blotches	1	1
Coma	1	1
Nausea sometimes	1	1
Allergic reaction	1	1
Throbbing legs	1	1
Dizziness (vertigo)	1	1
Muscle and joint pain	1	1
Shivering	1	1
Pain in feet	1	1
legs feel like some one pouring ice-water in the bone, very painful	1	1
Soreness	1	1
Muscle aches	1	1
Vitamin B12 deficiency	1	1
Sinus congestion	1	1
red marks on skin	1	1

Reported Dosages

Frequently reported dosages based on patients currently taking Interferon beta-1b SubQ Injection. See all 97 dosages ►

weekly	0.075 mg every other day	0.3 mg weekly	0.25 mg	0.3 mg	0.3 mg every other day	0.3 mg daily	1 mg every other day	1 mg	1 mg daily
8	8	11	9	42	597	79	25	21	8

Reported Stop Reasons

Why Patients Stopped Taking Interferon beta-1b SubQ Injection (multiple reasons could be selected)
Reason	# Patients	Percentage of patients
Side effects too severe	290
Did not seem to work	261
Doctor's advice	260
Other	136
Expense	27
Change in health plan coverage	25
Course of treatment ended	17
Personal research	16
Not indicated	12

See all 727 patients who’ve stopped taking Interferon beta-1b SubQ Injection

Reported Duration See details about how long patients take this treatment ▼ Reported Duration Hide details ▲

Currently Taking Interferon beta-1b SubQ Injection

A bar graph

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
1	3	6	19	27	164

Stopped Taking Interferon beta-1b SubQ Injection

A bar graph

0-1 month	1-3 months	3-6 months	6 months-1year	1-2 years	2 years or more
29	56	88	125	139	272

Reported Adherence, Burden & Cost See details from patient evaluations ▼

Adherence

Taking treatment as prescribed

Adherence of Interferon beta-1b SubQ Injection

Always	326	75%
Usually	86	20%
Sometimes	8	2%
Never	14	3%

Burden

Difficulty being on treatment

Burden of Interferon beta-1b SubQ Injection

Very	43	10%
Somewhat	128	29%
A little	149	34%
Not at all	114	26%

Cost

Paid out of pocket

Cost of Interferon beta-1b SubQ Injection

$200+	28	9%
$100-199	18	5%
$50-99	54	16%
$25-49	77	23%
< $25	149	45%

See more information, including instructions, precautions, side effects, and interactions.

Patient Evaluations

See all 434 patient evaluations

babybunny

Sex: F

Sensation: Moderate

Overall: Mild

Cognition: moderate

Vision: mild

Speech: mild

Swallowing: none

Upper limb: moderate

Walking: moderate
babybunny

250 mcg every other day

since May 09, 2010
Efficacy Major for MS (Multiple Sclerosis)
Side Effects Mild
Advice/Tips I had the nurses injecting me as I lost too much Grip in my hands to do it myself. Site reactions differ, but normally get red blotches that come up like bru... See full evaluation

trey06

Sex: M

Sensation: Moderate

Overall: Mild

Cognition: mild

Vision: mild

Speech: mild

Swallowing: mild

Upper limb: mild

Walking: mild
trey06

0.3 mg every other day

since May 28, 2011
Efficacy Moderate for MS (Multiple Sclerosis)
Side Effects Moderate
Advice/Tips I could not get over the flu like symptoms, And injection site reactions. See full evaluation

Aturo

Sex: M

Sensation: Severe

Overall: Moderate

Cognition: moderate

Vision: moderate

Speech: moderate

Swallowing: moderate

Upper limb: moderate

Walking: severe
Aturo

0.3 mg daily

since Nov 10, 2010
Efficacy None for MS (Multiple Sclerosis)
Side Effects None
Advice/Tips For some this treatment works as for me it didn't. I would like to THANK All those at NOVARTISE for their help and followup care. After careful thought... See full evaluation

See all 434 patient evaluations

Report created on May 26, 2012.

PatientsLikeMe ™