Lichen Sclerosus

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Lichen Sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

Common symptoms reported by people with Lichen Sclerosus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Lichen Sclerosus

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Clobex)
Type
Prescription Drug
How many have tried
4
Tried for
Lichen Sclerosus (4)
Check to add this treatment to your profile
Treatment name(s)

(Spinal Chiropractic)
Type
Physical Therapy
How many have tried
2
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Cortizone-10)
Type
Prescription Drug
How many have tried
2
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Protopic)
Type
Prescription Drug
How many have tried
2
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Testosterone Cypionate)
Type
Prescription Drug
How many have tried
2
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Essential Oils)
Type
Procedures
How many have tried
1
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Betnovate)
Type
Prescription Drug
How many have tried
1
Tried for
Lichen Sclerosus (1)
Check to add this treatment to your profile
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with Lichen Sclerosus, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Lichen Sclerosus

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Clobex)
Perceived effectiveness
for Lichen Sclerosus (3 evaluations)
Side effects
None Thinning of skin
How many evaluations
3
Tried for
Lichen Sclerosus (4)
Check to add this treatment to your profile
Treatment name(s)

(Spinal Chiropractic)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (2)
Check to add this treatment to your profile
Treatment name(s)

(Cortizone-10)
Perceived effectiveness
for Lichen Sclerosus (2 evaluations)
Side effects
How many evaluations
2
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Protopic)
Perceived effectiveness
for Lichen Sclerosus (2 evaluations)
Side effects
Burning Pain
How many evaluations
2
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Testosterone Cypionate)
Perceived effectiveness
for Lichen Sclerosus (4 evaluations)
Side effects
How many evaluations
4
Tried for
Lichen Sclerosus (2)
Check to add this treatment to your profile
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Essential Oils)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Betnovate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Lichen Sclerosus (1)
Check to add this treatment to your profile
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Celexa)
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
Stomach pain
How many evaluations
1
Tried for
Depressed mood (1)

Data from patients with Lichen Sclerosus, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lichen Sclerosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 9
40s 14
50s 32
60s 23
70+ 3

Gender

Distribution of females vs. males

90% Females
10% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 3
30-39 years 17
40-49 years 13
50-59 years 9
60-69 years 2
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 63
Not Diagnosed 6

These charts show data from Lichen Sclerosus patients who have completed their condition history
Last updated: