Lichen Sclerosus

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Lichen Sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

What is it like to have Lichen Sclerosus?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Lichen Sclerosus and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Clobex, Dermovate, Etrivex shampoo) 4 more
Type
Prescription Drug
How many have tried
4
How many evaluations
3
Treatment name(s)

(Activator Method, Atlas Orthogonal Chiropractic, Diversified technique based on motion palpation) 12 more
Type
Physical Therapy
How many have tried
2
How many evaluations
0
Treatment name(s)

(Calmurid HC, Corticaine Cream, Cortifoam) 8 more
Type
Prescription Drug
How many have tried
2
How many evaluations
2
Treatment name(s)

(Protopic)
Type
Prescription Drug
How many have tried
2
How many evaluations
2
Treatment name(s)

(Andriol, AndroGel, AndroGel 5 g/packet) 21 more
Type
Prescription Drug
How many have tried
2
How many evaluations
4
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Adderall, Adderall XR, Amphetamine Salts) 2 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Aromatherapy Creams, Candles, Essential Oils) 2 more
Type
Procedures
How many have tried
1
How many evaluations
0
Treatment name(s)

(Beloderm, Beta-Val, Betnovate) 3 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
Treatment name(s)

(Aplenzin, Budeprion SR, Budeprion XL) 12 more
Type
Prescription Drug
How many have tried
1
How many evaluations
0
See all 26 treatments
Data from patients with Lichen Sclerosus, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Lichen Sclerosus

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Clobex, Dermovate, Etrivex shampoo) 4 more
How many have tried
4
Perceived effectiveness
Side effects
None Thinning of skin
How many evaluations
3
Treatment name(s)

(Activator Method, Atlas Orthogonal Chiropractic, Diversified technique based on motion palpation) 12 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Calmurid HC, Corticaine Cream, Cortifoam) 8 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
2
Treatment name(s)

(Protopic)
How many have tried
2
Perceived effectiveness
Side effects
Burning Pain
How many evaluations
2
Treatment name(s)

(Andriol, AndroGel, AndroGel 5 g/packet) 21 more
How many have tried
2
Perceived effectiveness
Side effects
How many evaluations
4
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Adderall, Adderall XR, Amphetamine Salts) 2 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Aromatherapy Creams, Candles, Essential Oils) 2 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Beloderm, Beta-Val, Betnovate) 3 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Aplenzin, Budeprion SR, Budeprion XL) 12 more
How many have tried
1
Perceived effectiveness
Side effects
How many evaluations
0
See all 26 treatments
Data from patients with Lichen Sclerosus, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lichen Sclerosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 10
40s 14
50s 31
60s 20
70+ 3

Gender

Distribution of females vs. males

89% Females
11% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 4
30-39 years 17
40-49 years 13
50-59 years 9
60-69 years 2
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 62
Not Diagnosed 6

These charts show data from Lichen Sclerosus patients who have completed their condition history
Last updated: