Lichen Sclerosus

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What is Lichen Sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

What is it like to have Lichen Sclerosus?

Common symptoms How bad it is What people are taking for it
Diazepam, Alprazolam, Aromatherapy
Chiropractic, Select Comfort Sleep Number Bed, Physiotherapy
Select Comfort Sleep Number Bed, Eszopiclone
Healing touch, Amphetamine-Dextroamphetamine, Armodafinil
Bupropion, Venlafaxine, Vitamin D3 (cholecalciferol)

What do patients take to treat Lichen Sclerosus and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Hc45 Hydrocortisone Cream, Cortizone-5, Cortifoam, Calmurid HC)


These charts show data from Lichen Sclerosus patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lichen Sclerosus on PatientsLikeMe?

  • 72 patients have this condition
  • 3 new patients joined this month
  • 35 say Lichen Sclerosus is their primary condition

Age Proportion # of patients
<20 1
20s 4
30s 8
40s 10
50s 24
60s 14
70+ 2


Distribution of females vs. males

84% Females
16% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 3
30-39 years 13
40-49 years 13
50-59 years 6
60-69 years 1
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 47
Not Diagnosed 5

These charts show data from Lichen Sclerosus patients who have completed their condition history
Last updated: