Lichen Sclerosus

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What is Lichen Sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

What is it like to have Lichen Sclerosus?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat Lichen Sclerosus and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Clobex, Dermovate, Etrivex shampoo) 4 more
Type
Prescription Drug
How many have tried
4
Tried for
Lichen Sclerosus (4)
Treatment name(s)

(Activator Method, Atlas Orthogonal Chiropractic, Diversified technique based on motion palpation) 12 more
Type
Physical Therapy
How many have tried
2
Tried for
Pain (2)
Treatment name(s)

(Calmurid HC, Corticaine Cream, Cortifoam) 8 more
Type
Prescription Drug
How many have tried
2
Tried for
Lichen Sclerosus (2)
Treatment name(s)

(Protopic)
Type
Prescription Drug
How many have tried
2
Tried for
Lichen Sclerosus (2)
Treatment name(s)

(Andriol, AndroGel, AndroGel 5 g/packet) 21 more
Type
Prescription Drug
How many have tried
2
Tried for
Lichen Sclerosus (2)
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Type
Prescription Drug
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Adderall, Adderall XR, Amphetamine Salts) 2 more
Type
Prescription Drug
How many have tried
1
Tried for
Fatigue (1)
Treatment name(s)

(Aromatherapy Creams, Candles, Essential Oils) 2 more
Type
Procedures
How many have tried
1
Tried for
Anxious mood (1)
Treatment name(s)

(Beloderm, Beta-Val, Betnovate) 3 more
Type
Prescription Drug
How many have tried
1
Tried for
Lichen Sclerosus (1)
Treatment name(s)

(Aplenzin, Budeprion SR, Budeprion XL) 12 more
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)

Data from patients with Lichen Sclerosus, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for Lichen Sclerosus

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Treatment name(s)

(Clobex, Dermovate, Etrivex shampoo) 4 more
Perceived effectiveness
for Lichen Sclerosus (3 evaluations)
Side effects
None Thinning of skin
How many evaluations
3
Tried for
Lichen Sclerosus (4)
Treatment name(s)

(Activator Method, Atlas Orthogonal Chiropractic, Diversified technique based on motion palpation) 12 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (2)
Treatment name(s)

(Calmurid HC, Corticaine Cream, Cortifoam) 8 more
Perceived effectiveness
for Lichen Sclerosus (2 evaluations)
Side effects
How many evaluations
2
Tried for
Lichen Sclerosus (2)
Treatment name(s)

(Protopic)
Perceived effectiveness
for Lichen Sclerosus (2 evaluations)
Side effects
Burning Pain
How many evaluations
2
Tried for
Lichen Sclerosus (2)
Treatment name(s)

(Andriol, AndroGel, AndroGel 5 g/packet) 21 more
Perceived effectiveness
for Lichen Sclerosus (4 evaluations)
Side effects
How many evaluations
4
Tried for
Lichen Sclerosus (2)
Treatment name(s)

(Adco-alzam, Alprax, Alprazol) 15 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Adderall, Adderall XR, Amphetamine Salts) 2 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Fatigue (1)
Treatment name(s)

(Aromatherapy Creams, Candles, Essential Oils) 2 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (1)
Treatment name(s)

(Beloderm, Beta-Val, Betnovate) 3 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Lichen Sclerosus (1)
Treatment name(s)

(Aplenzin, Budeprion SR, Budeprion XL) 12 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)

Data from patients with Lichen Sclerosus, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lichen Sclerosus on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 4
30s 9
40s 14
50s 32
60s 21
70+ 3

Gender

Distribution of females vs. males

89% Females
11% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 3
30-39 years 17
40-49 years 13
50-59 years 9
60-69 years 3
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 63
Not Diagnosed 6

These charts show data from Lichen Sclerosus patients who have completed their condition history
Last updated: