Lichen Sclerosus

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What is Lichen Sclerosus?

Lichen sclerosus is an uncommon autoimmune condition that creates patchy, white skin that's thinner than normal. Lichen sclerosus may affect skin on any part of your body, but most often involves skin of the vulva, foreskin of the penis or skin around the anus.

What is it like to have Lichen Sclerosus?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Lichen Sclerosus and its symptoms?

These charts show data from Lichen Sclerosus patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lichen Sclerosus on PatientsLikeMe?

Age Proportion # of patients
<20 0
20s 4
30s 10
40s 14
50s 30
60s 19
70+ 3


Distribution of females vs. males

89% Females
11% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 4
30-39 years 17
40-49 years 13
50-59 years 9
60-69 years 2
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 60
Not Diagnosed 6

These charts show data from Lichen Sclerosus patients who have completed their condition history
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