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Home > Conditions > Budd-Chiari Syndrome Community

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What is it like to have Budd-Chiari?

Common symptoms	How bad it is	What people are taking for it
Severity Severe Moderate Mild None
Anxious mood	2 (33%) patients experienced severe severity 2 (33%) patients experienced moderate severity 0 (0%) patients experienced mild severity 2 (33%) patients experienced no severity	Nothing reported yet
Pain	1 (20%) patients experienced severe severity 2 (40%) patients experienced moderate severity 1 (20%) patients experienced mild severity 1 (20%) patients experienced no severity	Nothing reported yet
Insomnia	3 (50%) patients experienced severe severity 1 (17%) patients experienced moderate severity 0 (0%) patients experienced mild severity 2 (33%) patients experienced no severity	Nothing reported yet
Fatigue	3 (50%) patients experienced severe severity 1 (17%) patients experienced moderate severity 1 (17%) patients experienced mild severity 1 (17%) patients experienced no severity	Nothing reported yet
Depressed mood	1 (17%) patients experienced severe severity 0 (0%) patients experienced moderate severity 2 (33%) patients experienced mild severity 3 (50%) patients experienced no severity	Nothing reported yet

What do patients take to treat Budd-Chiari and its symptoms?

Treatments reported by members	Perceived effectiveness	Overall rating of side effects	# of Evaluations
Dalteparin	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Warfarin (Marevan, Jantoven, Nicoumalone, Coumadin)	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Heparin	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0

These charts show data from Budd-Chiari patients' latest treatment evaluations

Who has Budd-Chiari at PatientsLikeMe?

11 patients have this condition
0 New patients joined this month
5 say Budd-Chiari is their primary condition

<20	20s	30s	40s	50s	60s	70+
Current Age
0 patients	1 patients	2 patients	3 patients	1 patients	0 patients	0 patients

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 years	1	1
20-29 years	1	1
30-39 years	0	0
40-49 years	1	1
50-59 years	0	0
60-69 years	0	0
70+ years	0	0

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	6	6
Not Diagnosed	1	1

These charts show data from Budd-Chiari patients who have completed their condition history

Find patients just like you Patients with Budd-Chiari

Where do I talk to patients with Budd-Chiari?

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Last updated: May 24, 2013