What is multiple exostoses?

Hereditary multiple exostoses is a condition in which people develop multiple benign (noncancerous) bone tumors called exostoses, most often by the time they are 12 years old. The number of exostoses and the bones on which they are located vary greatly among affected individuals.

How do members experience multiple exostoses?

Top 5 symptoms reported by people with multiple exostoses*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for multiple exostoses*

Who has multiple exostoses on PatientsLikeMe?

Age

Age Proportion # of patients
<20 8
20s 10
30s 18
40s 15
50s 10
60s 9
70+ 2

Distribution of sex

Sex

Sex Proportion # of patients
Male 21
Female 48