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What do patients take to treat Wegener's granulomatosis and its symptoms?

Commonly prescribed and frequently used treatments

Treatment name	Efficacy	Overall rating of side effects	# of Evaluations
Cyclophosphamide (Endoxan, HiCY (High Intensity Cytoxan), Cytoxan)	1 (33%) experienced major efficacy 1 (33%) experienced moderate efficacy 0 (0%) experienced slight efficacy 0 (0%) experienced no efficacy 1 (33%) could not tell	0 (0%) experienced severe side effects 1 (33%) experienced moderate side effects 2 (67%) experienced mild side effects 0 (0%) experienced no side effects	3
Prednisone (Encorton, Deltasone, Pronizon)	2 (67%) experienced major efficacy 1 (33%) experienced moderate efficacy 0 (0%) experienced slight efficacy 0 (0%) experienced no efficacy 0 (0%) could not tell	0 (0%) experienced severe side effects 3 (100%) experienced moderate side effects 0 (0%) experienced mild side effects 0 (0%) experienced no side effects	3
Methotrexate (Methotrexate Sodium, Preservative Free, Metoject, Rheumatrex Dose Pack, Trexall)	0 (0%) experienced major efficacy 0 (0%) experienced moderate efficacy 0 (0%) experienced slight efficacy 0 (0%) experienced no efficacy 1 (100%) could not tell	1 (100%) experienced severe side effects 0 (0%) experienced moderate side effects 0 (0%) experienced mild side effects 0 (0%) experienced no side effects	1
Methylprednisolone (Urbason solubile, Methylprednisolon AL, Advantan, Medrol DosePak)	0 (NaN) experienced major efficacy 0 (NaN) experienced moderate efficacy 0 (NaN) experienced slight efficacy 0 (NaN) experienced no efficacy 0 (NaN) could not tell	0 (NaN) experienced severe side effects 0 (NaN) experienced moderate side effects 0 (NaN) experienced mild side effects 0 (NaN) experienced no side effects	0
Folic Acid (Folic Acid Prescription, Puritan's Pride Folic Acid, Endofolin, Actifolate)	0 (NaN) experienced major efficacy 0 (NaN) experienced moderate efficacy 0 (NaN) experienced slight efficacy 0 (NaN) experienced no efficacy 0 (NaN) could not tell	0 (NaN) experienced severe side effects 0 (NaN) experienced moderate side effects 0 (NaN) experienced mild side effects 0 (NaN) experienced no side effects	0
Leucovorin	0 (NaN) experienced major efficacy 0 (NaN) experienced moderate efficacy 0 (NaN) experienced slight efficacy 0 (NaN) experienced no efficacy 0 (NaN) could not tell	0 (NaN) experienced severe side effects 0 (NaN) experienced moderate side effects 0 (NaN) experienced mild side effects 0 (NaN) experienced no side effects	0

These charts show data from Wegener's granulomatosis patients' latest treatment evaluations

Who has Wegener's granulomatosis at PatientsLikeMe?

41 patients have this condition
2 New patients joined this month
21 say Wegener's granulomatosis is their primary condition

<20	20-29	30-39	40-49	50-59	60-69	70+
Current Age
0 patients	4 patients	12 patients	10 patients	7 patients	4 patients	2 patients

Distribution of females vs. males
Gender
68%	Females
33%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 yrs	5	5
20-29 yrs	4	4
30-39 yrs	6	6
40-49 yrs	3	3
50-59 yrs	1	1
60-69 yrs	2	2
70+ yrs	0	0

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	24	24
Not Officially Diagnosed	2	2

These charts show data from Wegener's granulomatosis patients who have completed their condition history

Find patients just like you Patients with Wegener's granulomatosis

Where do I talk to patients with Wegener's granulomatosis?

Immune, Inflammatory and Infections Room

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