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Home > Conditions > Lambert-Eaton Myasthenic Syndrome Community

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What is it like to have Lambert-Eaton Myasthenic?

Common symptoms	How bad it is	What people are taking for it
Severity Severe Moderate Mild None
Anxious mood	0 (0%) patients experienced severe severity 2 (25%) patients experienced moderate severity 4 (50%) patients experienced mild severity 2 (25%) patients experienced no severity	Nothing reported yet
Pain	1 (13%) patients experienced severe severity 4 (50%) patients experienced moderate severity 2 (25%) patients experienced mild severity 1 (13%) patients experienced no severity	Nothing reported yet
Insomnia	0 (0%) patients experienced severe severity 2 (25%) patients experienced moderate severity 4 (50%) patients experienced mild severity 2 (25%) patients experienced no severity	Nothing reported yet
Fatigue	6 (75%) patients experienced severe severity 2 (25%) patients experienced moderate severity 0 (0%) patients experienced mild severity 0 (0%) patients experienced no severity	Nothing reported yet
Depressed mood	0 (0%) patients experienced severe severity 3 (43%) patients experienced moderate severity 3 (43%) patients experienced mild severity 1 (14%) patients experienced no severity	Nothing reported yet

What do patients take to treat Lambert-Eaton Myasthenic and its symptoms?

Treatments reported by members	Perceived effectiveness	Overall rating of side effects	# of Evaluations
Pyridostigmine (Mestinon, Kalymin 60N)	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Prednisone (Pulmison, Prednisone Intensol, Encorton, Deltasone)	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Azathioprine (Azasan, Imurel, Imuran, Azapress)	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Intravenous Immuno Globulin IVIg (Octagam, Privigin, Gamunex, Gammagard)	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0
Plasmapheresis	0 (NaN%) experienced major perceived effectiveness 0 (NaN%) experienced moderate perceived effectiveness 0 (NaN%) experienced slight perceived effectiveness 0 (NaN%) experienced no perceived effectiveness 0 (NaN%) could not tell	0 (NaN%) experienced severe side effects 0 (NaN%) experienced moderate side effects 0 (NaN%) experienced mild side effects 0 (NaN%) experienced no side effects	0

These charts show data from Lambert-Eaton Myasthenic patients' latest treatment evaluations

Who has Lambert-Eaton Myasthenic at PatientsLikeMe?

10 patients have this condition
1 New patient joined this month
6 say Lambert-Eaton Myasthenic is their primary condition

<20	20s	30s	40s	50s	60s	70+
Current Age
0 patients	1 patients	1 patients	2 patients	4 patients	1 patients	1 patients

Distribution of females vs. males
Gender
90%	Females
10%	Males

Age at first symptom
Age at first symptom	# of patients	Proportion
0-19 years	0	0
20-29 years	0	0
30-39 years	1	1
40-49 years	1	1
50-59 years	3	3
60-69 years	1	1
70+ years	0	0

Diagnosis status
Diagnosis status	# of patients	Proportion
Diagnosed	7	7

These charts show data from Lambert-Eaton Myasthenic patients who have completed their condition history

Where do I talk to patients with Lambert-Eaton Myasthenic?

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Last updated: May 26, 2013