What is Sotos syndrome?

Sotos syndrome is a disorder characterized by a distinctive facial appearance, overgrowth in childhood, and learning disabilities or delayed development. Characteristic facial features include a long, narrow face; a high forehead; flushed (reddened) cheeks; and a small, pointed chin.

How do members experience Sotos syndrome?

Top 5 symptoms reported by people with Sotos syndrome*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for Sotos syndrome*

Who has Sotos syndrome on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 0
30s 0
40s 3
50s 0
60s 0
70+ 0

Distribution of sex

Sex

Sex Proportion # of patients
Male 3
Female 3