MSA (Multiple System Atrophy)

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is MSA (Multiple System Atrophy)?

Multiple system atrophy (MSA) is a degenerative neurological disorder. MSA is associated with the degeneration of nerve cells in specific areas of the brain. This cell degeneration causes problems with movement, balance and autonomic functions of the body such as bladder control.

What is it like to have MSA (Multiple System Atrophy)?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat MSA (Multiple System Atrophy) and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Apo-Levocarb, Caramet CR, Carbidopa Levodopa ER) 20 more
Type
Prescription Drug
How many have tried
35
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
18
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
16
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Type
Prescription Drug
How many have tried
5
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
5
Tried for
Depressed mood (4) Pain (1)
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Type
Prescription Drug
How many have tried
4
Tried for
Anxious mood (2) Stiffness/Spasticity (2)
3 more
Treatment name(s)

(Bocusate, Colace, Coloxyl) 16 more
Type
Over the Counter Drug
How many have tried
4
Tried for
Constipation (4)
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
4
Tried for
Pain (4)
Treatment name(s)

(Bifiteral, Dulcolactol, Duphalac) 3 more
Type
Prescription Drug
How many have tried
4
Tried for
Constipation (4)
Treatment name(s)

(Balance and gait training, Bed Body Movement w/PT, Exercise machines) 10 more
Type
Physical Therapy
How many have tried
4

Data from patients with MSA (Multiple System Atrophy), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for MSA (Multiple System Atrophy)

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Treatment name(s)

(Apo-Levocarb, Caramet CR, Carbidopa Levodopa ER) 20 more
Perceived effectiveness
for MSA (Multiple System Atrophy) (11 evaluations)
Side effects
Low blood pressure Allergic reaction 7 more
How many evaluations
18
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Perceived effectiveness
for MSA (Multiple System Atrophy) (5 evaluations)
Side effects
Dizziness with hypotension upon standing
How many evaluations
5
Treatment name(s)

(Florinef)
Perceived effectiveness
for MSA (Multiple System Atrophy) (5 evaluations)
Side effects
couldn't walk for 6-8 hour afterwards
How many evaluations
5
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Perceived effectiveness
for MSA (Multiple System Atrophy) (1 evaluation)
Side effects
Dizziness and feeling faint
How many evaluations
3
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Perceived effectiveness
for Depressed mood (1 evaluation)
Side effects
How many evaluations
1
Tried for
Depressed mood (4) Pain (1)
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Anxious mood (2) Stiffness/Spasticity (2)
3 more
Treatment name(s)

(Bocusate, Colace, Coloxyl) 16 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Constipation (4)
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Pain (4)
Treatment name(s)

(Bifiteral, Dulcolactol, Duphalac) 3 more
Perceived effectiveness
for Constipation (1 evaluation)
Side effects
How many evaluations
1
Tried for
Constipation (4)
Treatment name(s)

(Balance and gait training, Bed Body Movement w/PT, Exercise machines) 10 more
Perceived effectiveness
for Balance problems (2 evaluations)
Side effects
How many evaluations
2

Data from patients with MSA (Multiple System Atrophy), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has MSA (Multiple System Atrophy) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 14
30s 26
40s 61
50s 150
60s 196
70+ 93

Gender

Distribution of females vs. males

52% Females
48% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 15
30-39 years 28
40-49 years 82
50-59 years 138
60-69 years 65
70+ years 11

Types
Condition Types Proportion # of patients
Multiple System Atrophy (MSA) 257
Olivopontocerebellar atrophy (OPCA/MSA-c) 88
Shy-Drager Syndrome (MSA-a) 49
Striatonigral degeneration (MSA-p) 68
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 355
Not Diagnosed 54

These charts show data from MSA patients who have completed their condition history
Last updated: