MSA (Multiple System Atrophy)

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What is MSA (Multiple System Atrophy)?

Multiple system atrophy (MSA) is a degenerative neurological disorder. MSA is associated with the degeneration of nerve cells in specific areas of the brain. This cell degeneration causes problems with movement, balance and autonomic functions of the body such as bladder control.

What is it like to have MSA (Multiple System Atrophy)?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

What do patients take to treat MSA (Multiple System Atrophy) and its symptoms?

You’ve tried
Treatment name(s)
Type
How many have tried
How many evaluations
Treatment name(s)

(Apo-Levocarb, Caramet CR, Carbidopa Levodopa ER) 20 more
Type
Prescription Drug
How many have tried
40
How many evaluations
22
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
Type
Prescription Drug
How many have tried
19
How many evaluations
5
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
16
How many evaluations
5
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
Type
Prescription Drug
How many have tried
5
How many evaluations
3
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
Type
Prescription Drug
How many have tried
4
How many evaluations
0
Treatment name(s)

(Bocusate, Colace, Coloxyl) 16 more
Type
Over the Counter Drug
How many have tried
4
How many evaluations
0
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
Type
Prescription Drug
How many have tried
4
How many evaluations
1
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
Type
Prescription Drug
How many have tried
4
How many evaluations
0
Treatment name(s)

(Bifiteral, Dulcolactol, Duphalac) 3 more
Type
Prescription Drug
How many have tried
4
How many evaluations
1
Treatment name(s)

(Balance and gait training, Bed Body Movement w/PT, Exercise machines) 10 more
Type
Physical Therapy
How many have tried
4
How many evaluations
2
See all 101 treatments
Data from patients with MSA (Multiple System Atrophy), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments for MSA (Multiple System Atrophy)

You’ve tried
Treatment name(s)
How many have tried
Perceived effectiveness
Side effects
How many evaluations
Treatment name(s)

(Apo-Levocarb, Caramet CR, Carbidopa Levodopa ER) 20 more
How many have tried
40
Perceived effectiveness
Side effects
Low blood pressure Allergic reaction 9 more
How many evaluations
22
Treatment name(s)

(APO Clonazepam, Clonex, Clonotril) 7 more
How many have tried
19
Perceived effectiveness
Side effects
Dizziness with hypotension upon standing
How many evaluations
5
Treatment name(s)

(Florinef)
How many have tried
16
Perceived effectiveness
Side effects
couldn't walk for 6-8 hour afterwards
How many evaluations
5
Treatment name(s)

(Amantix, Amantrel, Mantadix) 3 more
How many have tried
5
Perceived effectiveness
Side effects
Dizziness and feeling faint
How many evaluations
3
Treatment name(s)

(Antenex, Atenex, Diastat) 6 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Bocusate, Colace, Coloxyl) 16 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Cymbalta, Cymgen, Yelate) 1 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Anexsia, Lorcet 10/650, Lorcet Plus) 13 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
0
Treatment name(s)

(Bifiteral, Dulcolactol, Duphalac) 3 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
1
Treatment name(s)

(Balance and gait training, Bed Body Movement w/PT, Exercise machines) 10 more
How many have tried
4
Perceived effectiveness
Side effects
How many evaluations
2
See all 101 treatments
Data from patients with MSA (Multiple System Atrophy), who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has MSA (Multiple System Atrophy) on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 15
30s 24
40s 61
50s 150
60s 196
70+ 90

Gender

Distribution of females vs. males

52% Females
48% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 14
30-39 years 28
40-49 years 81
50-59 years 137
60-69 years 65
70+ years 11

Types
Condition Types Proportion # of patients
Multiple System Atrophy (MSA) 255
Olivopontocerebellar atrophy (OPCA/MSA-c) 88
Shy-Drager Syndrome (MSA-a) 49
Striatonigral degeneration (MSA-p) 68
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 353
Not Diagnosed 53

These charts show data from MSA patients who have completed their condition history
Last updated: