What is SCID (Severe Combined Immunodeficiency Disease)?

Severe Combine Immune Deficiency is a primary immune deficiency genetic disorder. The defining characteristic is usually a severe defect in both the T- & B-lymphocyte systems, which are impaired due to a defect in one of several possible genes.

What do patients take to treat SCID and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations
(Octagam, Privigin, Gamunex, Gammagard)
0
0

These charts show data from SCID patients' latest treatment evaluations

Who has SCID at PatientsLikeMe?

<20 20s 30s 40s 50s 60s 70+
Current Age
Distribution of females vs. males
Gender
50% Females
50% Males
Age at first symptom
Age at first symptom # of patients Proportion
0-19 years 2
20-29 years 0
30-39 years 1
40-49 years 0
50-59 years 0
60-69 years 0
70+ years 0
Diagnosis status
Diagnosis status # of patients Proportion
Diagnosed 2
Not Diagnosed 2

These charts show data from SCID patients who have completed their condition history

Let's build this page together! When you share what it's like to have SCID (Severe Combined Immunodeficiency Disease) through your profile, those stories and data appear here too.

Got a question about living with SCID (Severe Combined Immunodeficiency Disease)? Members in the forum might have the answers.