Lewy Body Disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Lewy Body Disease?

Dementia with Lewy bodies is characterized by cognitive decline, recurrent visual hallucinations, postural instability, gait difficulties, masked facial expression, rapid eye movement sleep behavioral disorder, and antipsychotic sensitivity.

What is it like to have Lewy Body Disease?

Common symptoms How bad it is What people are taking for it
Nothing reported yet
Nothing reported yet

What do patients take to treat Lewy Body Disease and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Aricept ODT, Aricept)


(Exelon Patch, Exelon)


(Gladem, Serdep, Apo-Sertraline, Altruline)


(Ran-Citalo, Depramil, Citalec, Co-Citalopram)


(Co-careldopa, Sinemet 25/100, Sinemet ER 50/200, Sinemet 25/250)


(Clonotril, APO Clonazepam, Rivotril drops, Klonopin Wafer)


(Ratio-Quetiapine, Dopaquel, Ketipinor, Cobalt-Quetiapine)


(Perizal, Buzon, Risperdal Quicklets, Risperdal M-Tab)


(Novo-Olanzapine, Teva Olanzapine, Zyprexa Zydis, Zyprexa)


(Razadyne, Razadyne ER)


(Sandoz Lorazepam, Tranquipam, Ativan SL, APO-Lorazepam)


These charts show data from Lewy Body Disease patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Lewy Body Disease on PatientsLikeMe?

  • 34 patients have this condition
  • 0 new patients joined this month
  • 26 say Lewy Body Disease is their primary condition

Age Proportion # of patients
<20 0
20s 0
30s 0
40s 1
50s 7
60s 4
70+ 17


Distribution of females vs. males

34% Females
66% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 0
30-39 years 0
40-49 years 2
50-59 years 5
60-69 years 4
70+ years 4

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 16
Not Diagnosed 2

These charts show data from Lewy Body Disease patients who have completed their condition history
Last updated: