What is inclusion body myositis?

Inclusion body myositis (IBM) is an inflammatory muscle disease, characterized by slowly progressive weakness and wasting of muscles, most apparent in the muscles of the arms and legs. There are two types: sporadic inclusion body myositis (sIBM) and hereditary inclusion body myopathy (hIBM).

How do members experience inclusion body myositis?

Top 5 symptoms reported by people with inclusion body myositis*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for inclusion body myositis*

Who has inclusion body myositis on PatientsLikeMe?

Age

Age Proportion # of patients
<20 0
20s 1
30s 4
40s 4
50s 19
60s 46
70+ 88

Distribution of sex

Sex

Sex Proportion # of patients
Male 87
Female 71