What is Interstitial Cystitis?

Interstitial cystitis, also known as painful bladder syndrome, is a non-infectious condition with recurring discomfort or pain in the urinary bladder and the surrounding pelvic region without an identifiable disease.

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What is it like to have Interstitial Cystitis?

Common Symptoms Patients' Latest Severity My Current Severity  
Severity
Severe
Moderate
Mild
None
Pelvic pain None Mild Moderate Severe
Urinary frequency None Mild Moderate Severe
Urinary urgency None Mild Moderate Severe

What do patients take to treat Interstitial Cystitis and its symptoms?

Commonly prescribed and frequently used treatments

Treatment name Efficacy Overall rating of side effects # of Evaluations
15
Baclofen
(Kemstro, DOM-Baclofen, Gabalon, Spinax)
1

These charts show data from Interstitial Cystitis patients' latest treatment evaluations

Who has Interstitial Cystitis at PatientsLikeMe?

<20 20-29 30-39 40-49 50-59 60-69 70+
Current Age
Distribution of females vs. males
Gender
98% Females
2% Males
Age at first symptom
Age at first symptom # of patients Proportion
0-19 yrs 34
20-29 yrs 48
30-39 yrs 49
40-49 yrs 35
50-59 yrs 8
60-69 yrs 2
70+ yrs 0
Diagnosis status
Diagnosis status # of patients Proportion
Diagnosed 200
Not Officially Diagnosed 18

These charts show data from Interstitial Cystitis patients who have completed their condition history