Idiopathic Hypersomnia

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What is Idiopathic Hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

What is it like to have Idiopathic Hypersomnia?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Idiopathic Hypersomnia and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Idiopathic Hypersomnia patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Idiopathic Hypersomnia on PatientsLikeMe?

Age Proportion # of patients
<20 0
20s 34
30s 49
40s 37
50s 19
60s 4
70+ 1


Distribution of females vs. males

80% Females
20% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 46
20-29 years 23
30-39 years 14
40-49 years 11
50-59 years 4
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 106
Not Diagnosed 16

These charts show data from Idiopathic Hypersomnia patients who have completed their condition history
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