Idiopathic Hypersomnia

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What is Idiopathic Hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

What is it like to have Idiopathic Hypersomnia?

Common symptoms How bad it is What people are taking for it
Ibuprofen, Tramadol, Cyclobenzaprine
Alprazolam, Clonazepam, Aripiprazole
Amitriptyline, Zolpidem, Quetiapine
Amphetamine-Dextroamphetamine, Methylphenidate, Ginseng
Duloxetine, Fluoxetine, Aripiprazole

What do patients take to treat Idiopathic Hypersomnia and its symptoms?

Treatments reported by members Perceived effectiveness Overall rating of side effects # of Evaluations

(Alertec, Modavigil, Modiodal, Provigil)

7

(PMS-Methylphenidate, APO-Methylphenidate, Methylphenidate 10, Methylphenidate 5)

6

(Adderall, D-Amphetamine Salt Combo, Amphetamine-dextroamphetamine ER, Amphetamine Salts)

6

(Metamina, Dexamphetamine, Dextroamphetamine sulfate ER, Dextroamphetamine CR)

4

These charts show data from Idiopathic Hypersomnia patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Idiopathic Hypersomnia on PatientsLikeMe?

  • 133 patients have this condition
  • 0 new patients joined this month
  • 48 say Idiopathic Hypersomnia is their primary condition

Age
Age Proportion # of patients
<20 2
20s 29
30s 44
40s 33
50s 16
60s 3
70+ 1

Gender

Distribution of females vs. males

77% Females
23% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 42
20-29 years 20
30-39 years 13
40-49 years 8
50-59 years 4
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 95
Not Diagnosed 16

These charts show data from Idiopathic Hypersomnia patients who have completed their condition history
Last updated: