Idiopathic Hypersomnia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Idiopathic Hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

What is it like to have Idiopathic Hypersomnia?

Common symptoms
How bad it is
What people are taking for it

What do patients take to treat Idiopathic Hypersomnia and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Idiopathic Hypersomnia patients’ latest treatment evaluations
Last updated:

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Idiopathic Hypersomnia on PatientsLikeMe?

  • 142patients have this condition
  • 2new patients joined this month
  • 55say Idiopathic Hypersomnia is their primary condition

Age Proportion # of patients
<20 0
20s 32
30s 46
40s 37
50s 17
60s 4
70+ 1


Distribution of females vs. males

78% Females
22% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 45
20-29 years 22
30-39 years 14
40-49 years 9
50-59 years 5
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 102
Not Diagnosed 17

These charts show data from Idiopathic Hypersomnia patients who have completed their condition history
Last updated: