Idiopathic Hypersomnia

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What is Idiopathic Hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

What is it like to have Idiopathic Hypersomnia?

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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What do patients take to treat Idiopathic Hypersomnia and its symptoms?

Treatments reported by members
Perceived effectiveness
Overall rating of side effects
# of Evaluations

These charts show data from Idiopathic Hypersomnia patients’ latest treatment evaluations
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  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Idiopathic Hypersomnia on PatientsLikeMe?

Age Proportion # of patients
<20 1
20s 34
30s 50
40s 41
50s 22
60s 4
70+ 1


Distribution of females vs. males

79% Females
21% Males
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 49
20-29 years 23
30-39 years 15
40-49 years 11
50-59 years 7
60-69 years 0
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 114
Not Diagnosed 17

These charts show data from Idiopathic Hypersomnia patients who have completed their condition history
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