What is PSP?

Progressive supranuclear palsy is a rare neurodegenerative disorder characterized by gait and balance difficulties and loss of coordination of eye movements.

What is it like to have PSP?

Common Symptoms Patients' Latest Severity My Current Severity  
Severity
Severe
Moderate
Mild
None
Alien Hand Syndrome None Mild Moderate Severe
Apathy None Mild Moderate Severe
Balance problems None Mild Moderate Severe
Bladder problems None Mild Moderate Severe
Constipation None Mild Moderate Severe
Difficulty getting comfortable in bed None Mild Moderate Severe
Emotional lability None Mild Moderate Severe
Excessive daytime sleepiness (somnolence) None Mild Moderate Severe
Eye movement difficulty None Mild Moderate Severe
Memory problems None Mild Moderate Severe
Problems concentrating None Mild Moderate Severe
Problems opening eyelids None Mild Moderate Severe
Sexual dysfunction None Mild Moderate Severe
Slowness None Mild Moderate Severe
Stiffness/Spasticity None Mild Moderate Severe

What do patients take to treat PSP and its symptoms?

Commonly prescribed and frequently used treatments

Treatment name Efficacy Overall rating of side effects # of Evaluations
Carbidopa-Levodopa
(Sinemet 12.5/50, Syndopa, Caramet CR, Kinson)
2
Pramipexole
(Teva pramipexole, Sifrol ER, Mirapex ER, Novo-Pramipexole)
1
Memantine
(Axura, Alois, Ebixa, Alzant)
1
Citalopram
(APO-Citalopram, Citabax, Mylan Citalopram, Alcytan)
0

These charts show data from PSP patients' latest treatment evaluations

Who has PSP at PatientsLikeMe?

<20 20-29 30-39 40-49 50-59 60-69 70+
Current Age
Distribution of females vs. males
Gender
64% Females
36% Males
Age at first symptom
Age at first symptom # of patients Proportion
0-19 yrs 1
20-29 yrs 0
30-39 yrs 2
40-49 yrs 8
50-59 yrs 13
60-69 yrs 17
70+ yrs 8
Types
Condition Types # of patients Proportion
Corticobasal degeneration (CBD) 12
Progressive supranuclear palsy (PSP / Steele Richardson Olszewski Syndrome) 46
Diagnosis status
Diagnosis status # of patients Proportion
Diagnosed 53
Not Officially Diagnosed 13

These charts show data from PSP patients who have completed their condition history