What is Primary Amenorrhea?

Primary amenorrhea is the failure of menstruation to occur by the age of 16 or 2 yr after the onset of puberty or by about age 14 in girls who have not yet gone through puberty. Treatments vary based on the underlying condition.

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Who has Primary Amenorrhea at PatientsLikeMe?

<20 20-29 30-39 40-49 50-59 60-69 70+
Current Age
Distribution of females vs. males
Gender
92% Females
8% Males
Age at first symptom
Age at first symptom # of patients Proportion
0-19 yrs 7
20-29 yrs 1
30-39 yrs 1
40-49 yrs 0
50-59 yrs 0
60-69 yrs 0
70+ yrs 0
Diagnosis status
Diagnosis status # of patients Proportion
Diagnosed 7
Not Officially Diagnosed 2

These charts show data from Primary Amenorrhea patients who have completed their condition history